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Re: FHIR on schema.org

From: Marc Twagirumukiza <marc.twagirumukiza@agfa.com>
Date: Thu, 26 May 2016 10:31:15 +0200
To: grahame@healthintersections.com.au
Cc: r@iannel.la, "its@lists.hl7.org" <its@lists.hl7.org>, w3c semweb HCLS <public-semweb-lifesci@w3.org>
Message-ID: <OFE1B1F927.82C6CBFB-ONC1257FBF.002EB78C-C1257FBF.002ECE58@agfa.com>
Hi Graham,
Thanks for this additional info.
The topic was discussed in last 'Semantic Web Health Care and Life 
Sciences Interest Group Teleconference' with the ongoing work from Harold 
Solbrig and Quoqian Jiang team wrt FHIR RDF Group. I do not know if 
there's specifically someone from FHIR involved yet.
See point 3 of the minutes:

>From health-lifesci.schema.org side ( extension lead by ScheMed W3C CG 
https://www.w3.org/community/schemed/ & http://health-lifesci.schema.org ) 
I had preliminary discussion with the Harold team and now we have to find 
a way forward.
There's already very interesting exploration and PoC as you will see in 
pointers from the minutes.

Kind Regards,


From:   Grahame Grieve <grahame@healthintersections.com.au>
To:     Marc Twagirumukiza/AXPZC/AGFA@AGFA
Cc:     r@iannel.la, "its@lists.hl7.org" <its@lists.hl7.org>, w3c semweb 
HCLS <public-semweb-lifesci@w3.org>
Date:   26/05/2016 10:16
Subject:        Re: FHIR on schema.org
Sent by:        grahameg@gmail.com

people are already trying to use FHIR as a standard for sharing their 
healthcare data for research. While organizations can't share other 
people's data in public, there's plenty of anecdotal evidence that the 
people will do it themselves. So the use case isn't impossible, it's only 
a policy question, as Marc says 

I'm interested in finding out more about this, how schema.org works with 
FHIR - is someone from the FHIR community involved in this effort?


On Thu, May 26, 2016 at 5:42 PM, Marc Twagirumukiza <
marc.twagirumukiza@agfa.com> wrote:
Hi Renato, 
I quite understand your concern. We need to discuss deeply this esp. wrt 
the requirements of the W3C Privacy review (understand and implications) . 

However it's the responsibility of every one to make its data public or 
This doesn't prevent us to provide a way of expressing data (for those who 
want to do so) with FHIR standard using schema.org 
Exposing this to public it's another story and we are not constraining 
people to do so. But expressing it (probably share it, under precise 
privacy constrains- between APIs) should be encouraged. 

Just for your example, we are already expressing our internal healthcare 
data (and EHR data) using schema.org (although they are not public). 
This has a benefit when we need to share such data with another APIs and 
there HL7 FHIR comes in as a standard. 

Kind Regards,

Marc Twagirumukiza 

From:        Renato Iannella <r@iannel.la> 
To:        "its@lists.hl7.org" <its@lists.HL7.org>, w3c semweb HCLS <
Date:        26/05/2016 02:04 
Subject:        FHIR on  schema.org 

I would like to raise a concern about the FHIR on Schema.Org proposal [1] 
discussed at the last teleconference [2].

The issue is about the conflicting purposes of the two. Schema.org is 
(primarily) about publishing structured data via public web pages for 
improved search engine experiences. FHIR is (primarily) about healthcare 
data about people.

Clearly, there is a significant Privacy issue with FHIR data, that should 
*not* be made on public web pages (for Goggle/Bing to consume),

How will this issue be addressed?

(As it stands, the proposal would not meet the requirements of the W3C 
Privacy review [3].)


[1] http://fhir.fhir-schema-org.appspot.com/
[2] https://www.w3.org/2016/05/24-hcls-minutes.html#item03
[3] https://www.w3.org/TR/security-privacy-questionnaire/


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Received on Thursday, 26 May 2016 08:31:42 UTC

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