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Re: FHIR on schema.org

From: Grahame Grieve <grahame@healthintersections.com.au>
Date: Thu, 26 May 2016 18:34:11 +1000
Message-ID: <CAG47hGYq=HqD-NMEPHvRcKw2nVUTf9HKiiX_jcFJ7C_dsX_ktw@mail.gmail.com>
To: Marc Twagirumukiza <marc.twagirumukiza@agfa.com>
Cc: r@iannel.la, "its@lists.hl7.org" <its@lists.hl7.org>, w3c semweb HCLS <public-semweb-lifesci@w3.org>
thanks. I'll chat to Harold

Grahame


On Thu, May 26, 2016 at 6:31 PM, Marc Twagirumukiza <
marc.twagirumukiza@agfa.com> wrote:

> Hi Graham,
> Thanks for this additional info.
> The topic was discussed in last 'Semantic Web Health Care and Life
> Sciences Interest Group Teleconference' with the ongoing work from Harold
> Solbrig and Quoqian Jiang team wrt FHIR RDF Group. I do not know if there's
> specifically someone from FHIR involved yet.
> See point 3 of the minutes:
> https://www.w3.org/2016/05/24-hcls-minutes.html
>
> From health-lifesci.schema.org side ( extension lead by ScheMed W3C CG
> https://www.w3.org/community/schemed/ & http://health-lifesci.schema.org
> ) I had preliminary discussion with the Harold team and now we have to find
> a way forward.
> There's already very interesting exploration and PoC as you will see in
> pointers from the minutes.
>
> Kind Regards,
>
> * Marc *
>
>
>
> From:        Grahame Grieve <grahame@healthintersections.com.au>
> To:        Marc Twagirumukiza/AXPZC/AGFA@AGFA
> Cc:        r@iannel.la, "its@lists.hl7.org" <its@lists.hl7.org>, w3c
> semweb HCLS <public-semweb-lifesci@w3.org>
> Date:        26/05/2016 10:16
> Subject:        Re: FHIR on schema.org
> Sent by:        grahameg@gmail.com
> ------------------------------
>
>
>
> people are already trying to use FHIR as a standard for sharing their
> healthcare data for research. While organizations can't share other
> people's data in public, there's plenty of anecdotal evidence that the
> people will do it themselves. So the use case isn't impossible, it's only a
> policy question, as Marc says
>
> I'm interested in finding out more about this, how *schema.org*
> <http://schema.org/> works with FHIR - is someone from the FHIR community
> involved in this effort?
>
> Grahame
>
>
> On Thu, May 26, 2016 at 5:42 PM, Marc Twagirumukiza <
> *marc.twagirumukiza@agfa.com* <marc.twagirumukiza@agfa.com>> wrote:
> Hi Renato,
> I quite understand your concern. We need to discuss deeply this esp. wrt
> the requirements of the W3C Privacy review (understand and implications) .
> However it's the responsibility of every one to make its data public or
> not.
> This doesn't prevent us to provide a *way of expressing data* (for those
> who want to do so) with FHIR standard using *schema.org*
> <http://schema.org/>
> Exposing this to public it's another story and we are not constraining
> people to do so. But expressing it (probably share it, under precise
> privacy constrains- between APIs) should be encouraged.
>
> Just for your example, we are already expressing our internal healthcare
> data (and EHR data) using *schema.org* <http://schema.org/> (although
> they are not public).
> This has a benefit when we need to share such data with another APIs and
> there HL7 FHIR comes in as a standard.
>
> Kind Regards,
>
> * Marc Twagirumukiza *
>
>
>
> From:        Renato Iannella <*r@iannel.la* <r@iannel.la>>
> To:        "*its@lists.hl7.org* <its@lists.hl7.org>" <*its@lists.HL7.org*
> <its@lists.HL7.org>>, w3c semweb HCLS <*public-semweb-lifesci@w3.org*
> <public-semweb-lifesci@w3.org>>
> Date:        26/05/2016 02:04
> Subject:        FHIR on  *schema.org* <http://schema.org/>
> ------------------------------
>
>
>
> I would like to raise a concern about the FHIR on Schema.Org proposal [1]
> discussed at the last teleconference [2].
>
> The issue is about the conflicting purposes of the two. Schema.org is
> (primarily) about publishing structured data via public web pages for
> improved search engine experiences. FHIR is (primarily) about healthcare
> data about people.
>
> Clearly, there is a significant Privacy issue with FHIR data, that should
> *not* be made on public web pages (for Goggle/Bing to consume),
>
> How will this issue be addressed?
>
> (As it stands, the proposal would not meet the requirements of the W3C
> Privacy review [3].)
>
> Renato
>
> [1] *http://fhir.fhir-schema-org.appspot.com/*
> <http://fhir.fhir-schema-org.appspot.com/>
> [2] *https://www.w3.org/2016/05/24-hcls-minutes.html#item03*
> <https://www.w3.org/2016/05/24-hcls-minutes.html#item03>
> [3] *https://www.w3.org/TR/security-privacy-questionnaire/*
> <https://www.w3.org/TR/security-privacy-questionnaire/>
>
>
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Received on Thursday, 26 May 2016 08:34:44 UTC

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