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Re: FHIR on schema.org

From: Grahame Grieve <grahame@healthintersections.com.au>
Date: Thu, 26 May 2016 18:12:43 +1000
Message-ID: <CAG47hGbo0qtPTB3JXFRA4KHsWdP+9C4bcVHXS2xEj1ViU-HvGg@mail.gmail.com>
To: Marc Twagirumukiza <marc.twagirumukiza@agfa.com>
Cc: r@iannel.la, "its@lists.hl7.org" <its@lists.hl7.org>, w3c semweb HCLS <public-semweb-lifesci@w3.org>
people are already trying to use FHIR as a standard for sharing their
healthcare data for research. While organizations can't share other
people's data in public, there's plenty of anecdotal evidence that the
people will do it themselves. So the use case isn't impossible, it's only a
policy question, as Marc says

I'm interested in finding out more about this, how schema.org works with
FHIR - is someone from the FHIR community involved in this effort?

Grahame


On Thu, May 26, 2016 at 5:42 PM, Marc Twagirumukiza <
marc.twagirumukiza@agfa.com> wrote:

> Hi Renato,
> I quite understand your concern. We need to discuss deeply this esp. wrt
> the requirements of the W3C Privacy review (understand and implications) .
> However it's the responsibility of every one to make its data public or
> not.
> This doesn't prevent us to provide a *way of expressing data* (for those
> who want to do so) with FHIR standard using schema.org
> Exposing this to public it's another story and we are not constraining
> people to do so. But expressing it (probably share it, under precise
> privacy constrains- between APIs) should be encouraged.
>
> Just for your example, we are already expressing our internal healthcare
> data (and EHR data) using schema.org (although they are not public).
> This has a benefit when we need to share such data with another APIs and
> there HL7 FHIR comes in as a standard.
>
> Kind Regards,
>
> * Marc Twagirumukiza *
>
>
>
> From:        Renato Iannella <r@iannel.la>
> To:        "its@lists.hl7.org" <its@lists.HL7.org>, w3c semweb HCLS <
> public-semweb-lifesci@w3.org>
> Date:        26/05/2016 02:04
> Subject:        FHIR on  schema.org
> ------------------------------
>
>
>
> I would like to raise a concern about the FHIR on Schema.Org proposal [1]
> discussed at the last teleconference [2].
>
> The issue is about the conflicting purposes of the two. Schema.org is
> (primarily) about publishing structured data via public web pages for
> improved search engine experiences. FHIR is (primarily) about healthcare
> data about people.
>
> Clearly, there is a significant Privacy issue with FHIR data, that should
> *not* be made on public web pages (for Goggle/Bing to consume),
>
> How will this issue be addressed?
>
> (As it stands, the proposal would not meet the requirements of the W3C
> Privacy review [3].)
>
> Renato
>
> [1] http://fhir.fhir-schema-org.appspot.com/
> [2] https://www.w3.org/2016/05/24-hcls-minutes.html#item03
> [3] https://www.w3.org/TR/security-privacy-questionnaire/
>
>
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Received on Thursday, 26 May 2016 08:13:13 UTC

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