- From: <Lovey@aol.com>
- Date: Thu, 17 Jun 1999 12:28:21 EDT
- To: w3c-wai-ig@w3.org
In a message dated 6/14/99 9:15:29 PM, rneff@moon.jic.com writes: << The cognitve environment needs to be represented but by whom. I do not see how one person can push a concept without represenation. The cognitve environment must be organized. >> I too am growing weary of this thread, it is very disturbing. The more I read the scarier it gets. The people Rob refers to are recognized and organized. All are recognized and organized by the ADA in the US. An example; Down's Syndrome is one of the most common congenital defects resulting in profound to mild developmental delays. That's one in every 600 births, 5,000 children are born with Downs in the US every year. There are 250,000 Americans with Downs Syndrome. Today, people with Down Syndrome live well into their 80's. This is just Trisomy 21 - consider all the other possibilities! As for Organizations; The Special Olympics, the Waisman Center and the Family Village at the U of Wisconsin at Madison were founded by the Kennedy Family, one of the children (Rose Kennedy - now an Adult) has Downs and lives in a convent near Madison, WI. See the list of URL's at the bottom of this post. You must also consider PWD's may have more than one disability and it may be from birth or injury or illness a combination of or from an occurrence later in life. I have more than one disability and my son does too. Within the next few years I may have even more. Has the WAI been testing it's "product" with the people who will be using it? Have they identified who the end users are? From this thread, obviously not. I worked in OEM/Enginering and Design for nearly 20 years before I became disabled. Every *concept* was tested with the proposed end user before it was even considered for development. Then there were endless debates and several series of prototypes were made before a concept was adopted. 99% went in the trash. The WAI is a noble and IMO a wonderful achievement - but an entire section of the population has been left out - perhaps forgotten or never considered? This is why you must define disability. You need to know what you are working towards. Maybe it's just too hard. Ciao -LK Some Links to DS websites and Orgs: Web Sites With An Extra 21st http://www.nas.com/downsyn http://www.tidalwave.net/~tcasten http://members.ttlc.net/~kehler/What'sUp.html http://www.unomas21.com/ http://www.museum.wa.gov.au/downs/html/exhibit.htm http://www.downsnet.org/ http://www.downscity.com/ Web Sites For New Parents http://home1.gte.net/mcelwee/ http://www.geocities.com/Heartland/Prairie/3272 http://www3.sympatico.ca/terry.edwards/Shelby.html http://www.nas.com/downsyn/holland.html http://www.nas.com/downsyn/welcome.html Worth Investing In http://www.bandofangels.org/ http://www.campventure.org/ http://uni-bremen.de/~downsyn/down23e.html http://www.DowniCreations.com/ http://www.concentric.net/~Lovlearn/ http://www.nb.net/mall/d/MSNCT.html http://www.nexusstudios.com/pac1/p1dolph.htm http://www.carriescards.com/ http://www.ericsgift.com/ http://www.geocities.com/TheTropics/Paradise/6225/stlukes.htm http://www.geocities.com/Broadway/1512/index.html http://www.pirchei.co.il/specl_ed/down/index.htm Medical Sources On DS http://www.ds-health.com/ http://www.altonweb.com/cs/downsyndrome/desai.html http://www.denison.edu/dsq/health96.html http://home.vicnet.net.au/~nmaa/bfinfo/down.html http://web.idirect.com/~ndseri http://www.growthcharts.com/ http://fohnix.metronet.com/~thearc/faqs/down.html http://www.teleport.com/~dsolns/mosds.html http://everybodys.com/downsyn/benke.html http://www.cmhc.com/factsfam/downsyn.htm http://www.teleport.com/~dsolns/metab.html http://www.meiogen.com/ http://www3.ncbi.nlm.nih.gov:80/htbin-post/Omim/dispmim?190685 http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/getmap?chromosome=21 DS Organizations Serving Countries http://www.span.com.au/downsyn/ http://www.elink.net/vdrgoltz/down.htm http://home.ican.net/~cdss/index.html http://www.dsamt.toronto.on.ca/Canadian.html http://home3.inet.tele.dk/kimmhjem/ http://www.nas.com/downsyn/europe.html http://www.redbay.com/newbies/med http://way2.net/down/syndrome.htm http://infofarm.cc.affrc.go.jp/~momotani/dowj1-e.html http://www.aipd.it/ http://www.waldonet.net.mt/dsam http://www.nas.com/downsyn/mexico.html http://www.ikr.nl/ikr/down.htm http://ngo.asiapac.net/down/toc.html http://www.downsideup.org/ http://www.ecomz.com/acd/mall/400018/index.html http://antonio.fa2.cie.uva.es/down/ http://www.nexus.es/fcsd/ http://www.netalpha.com.br/updown/index.html http://www.aleph.com.br:80/cdi/ http://www.ecof.org.br/projetos/down/index.htm http://www.geocities.com/Heartland/9796 http://ep.open.ac.uk/wgma/Chris/UKDSinfo.html http://www.downs-syndrome.org.uk/ http://www.chasque.apc.org/nexo/asocdown/indexdow.htm http://www.carol.net/~ndsc http://www.acds.org/ http://www.ndss.org/ http://www.nads.org/ DS Organizations Serving States http://www.netfeed.com/ccdsf/ http://www.mdsc.org/ http://www.netfeed.com/ccdsf/ http://www.mm.com/dsam http://www.knoxtoo.com/dsamt http://www.netutah.com/udsf http://www.flash.net/~nxtmedia/tdsa/index.html http://www.telebyte.com/upside/upside.html http://www.dsaw.org:8080/index.htm DS Organizations Serving Counties/Cities http://www.unitedwayatl.org/211_Database/helpbook/N1388000.html http://www.dsagc.com/ http://coins0.coin.missouri.edu/community/soc-services/family-net/dsa.html http://www.gate.net/~sbonsett/gcds/gcds_hme.htm http://www.angelfire.com/hi/desertDS/ http://www.arnoldcorporation.com/yg/downsyndromehv.htm http://www.qtm.net/~mtedesco/dsrl_home.htm http://www.cpanorama.com/ds/ds_main.htm http://www.servicom.es/asdm http://members.aol.com/GMDSA/index.html http://www.mdss1.home.ml.org/ http://www.mhdsa.org/ http://www.flash.net/~proud1/ http://www.users.cts.com/crash/c/calemont/dsasd.html http://ptolemy.eecs.berkeley.edu/~pino/DS/ http://members.aol.com/DownStLoui/index.html http://www.geocities.com/HotSprings/1369 http://www.dsamt.toronto.on.ca/ http://www.magiclink.com/web/parents/ http://www.valencianet.com/ongs/asindown.htm http://www.west.net/ucx/vcdsa/index.html [source: "<A HREF="http://www.geocities.com/~upanddown/">Being Into Down Syndrome </A>©" http://www.geocities.com/~upanddown/] And there are thousands more DS Websites........... Do these sites carry the Bobby Icon? Most do not because they know as much about the WAI and Bobby as the WAI and Bobby know of them.
Received on Thursday, 17 June 1999 12:31:20 UTC