Re: ClinicalTrial Schema

Yes - this sounds like great work. Thanks for keeping everyone posted!

Dan

On Wed, 23 Sep 2020 at 19:37, Nolan Nichols <nolan.nichols@gmail.com> wrote:

> Hi Steve,
>
> Thanks for the information and glad to see that you're making progress.
> Please do send an update when the portal comes online. I'd also be
> interested in learning more about your ETL pipeline. Having a resource that
> brings together the data sources listed on your wiki would be very helpful,
> esp. if there is an API available.
>
> Cheers,
>
> Nolan
>
> On Tue, Sep 15, 2020 at 1:57 AM Steve CANHAM <Steve.CANHAM@ecrin.org>
> wrote:
>
>> Hi Nolan
>>
>> Just to add a few comments to my colleague’s Christian’s earlier email.
>>
>>    - By co-incidence, we were completing the revision of the ECRIN
>>    metadata schema this week. I have attached a document with the new version
>>    of the schema (v4) together with appendices that summarise the values used
>>    for the category questions. (The Zenodo reference has been updated as
>>    well). The changes are not huge but are summarised at
>>    https://ecrin-mdr.online/index.php/JSON_files_v3_to_v4_changes
>>    <https://eur03.safelinks.protection.outlook.com/?url=https%3A%2F%2Fecrin-mdr.online%2Findex.php%2FJSON_files_v3_to_v4_changes&data=02%7C01%7C%7C8dd163537e7c4d65f03f08d858c1abbd%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C637356936127477150&sdata=9meKwOvX8qCnrjI9z%2FAsYbr7fpbw9pvkyToBG5Iifss%3D&reserved=0>.
>>    In particular with this revision we have tried to align the schema more
>>    closely with some of the other work in this area, for instance making use
>>    of the DUO classification of biomedical consents, and an emerging EOSC
>>    classification of document risk.
>>    - The current metadata repository (MDR) is several months out of date
>>    as far as the data is concerned, though it still illustrates the principle
>>    of what we are trying to do.
>>    - A new portal – more directly linked to the data source than the
>>    current one - is under development and we hope to have that live by October
>>    / November.
>>    - If you would like any further details – including for instance how
>>    the data is structured internally in the database, or how we extract and
>>    aggregate the data, (the project wiki is out of date in this respect)
>>    please let me know.
>>
>> Cheers
>>
>> Steve
>>
>>
>>
>>
>>
>>
>>
>> Sent from Mail <https://go.microsoft.com/fwlink/?LinkId=550986> for
>> Windows 10
>>
>>
>>
>