Re: Issue 136 - Use Person First Language

This is compelling, thank you for sharing.

I'm curious if you have demographic data regarding the individuals who
responded? Is there representation across levels of diagnosis, ethnic
background, tech-participation, socio-economic status, and employment type
or status? Were the responses fairly international?

As a new participant in the group, how do we approach supporting a decision
like this? Do we connect to study data or other materials to support
linguistic choices that might be contentious?

Thank you,

Rain

On Tue, Feb 9, 2021 at 3:04 AM Lisa Seeman <lisa1seeman@gmail.com> wrote:

> Thank you David. Could you send us a link to the conversation and poll?
>
> Thanks
>
> :Lisa
>
> On Mon, Feb 8, 2021 at 8:00 PM David Fazio <dfazio@helixopp.com> wrote:
>
>> After engaging in a public opinion poll, and even larger online
>> conversation with persons that are Autistic, it has become overwhelmingly
>> clear that this disability population prefers identity first language.
>>
>>
>>
>> *David Fazio, President | **[image: signature_1633184954]*
>> <https://www.linkedin.com/in/davidpfazio/>
>>
>> [image: A picture containing sitting Description automatically generated]
>>  |[image: signature_1943303136]
>> <https://www.linkedin.com/company/helixopportunity>
>>
>> *P. +1 510.590.7363 <(510)%20590-7363>| e. **dfazio@helixopp.com*
>> <dfazio@helixopp.com>*| W. **www.helixopp.com* <http://www.helixopp.com>
>>
>>
>>
>> [image: A blue and white sign Description automatically generated with
>> low confidence]                   [image: Logo Description automatically
>> generated]
>>
>>
>>
>> *From: *Pascalides, Justine E <JPascalides@ETS.ORG>
>> *Date: *Tuesday, January 19, 2021 at 12:38 PM
>> *To: *David Fazio <dfazio@helixopp.com>
>> *Cc: *Rachael Montgomery <rachael@accessiblecommunity.org>
>> *Subject: *FW: Issue 136 - Use Person First Language
>>
>> Hi David,
>>
>>
>>
>> I hope that this email finds you well! Although I missed the COGA meeting
>> last week, I understand that you were going to consult with some of your
>> professional contacts on the issue of person-first language regarding the
>> below issue. Jennie mentioned that you requested feedback via LinkedIn.
>> Were you also able to reach out to the other groups that you mentioned
>> during last week’s COGA call? Thanks very much for your help with this.
>>
>>
>>
>> Justine
>>
>>
>>
>> *From:* Pascalides, Justine E
>> *Sent:* Wednesday, January 13, 2021 11:39 AM
>> *To:* public-cognitive-a11y-tf <public-cognitive-a11y-tf@w3.org>
>> *Subject:* Issue 136 - Use Person First Language
>>
>>
>>
>> Hello,
>>
>>
>>
>> In issue 139 <https://github.com/w3c/coga/issues/139>, we received a
>> comment about the issue of person first language when referring to autistic
>> people (e.g., person with autism). The use of person first language in this
>> scenario is a source of contention and it seems that identity first
>> language (e.g., autistic person) is preferred. This is relevant to the text
>> from 5 patterns in Content Usable, as follows. Note that I’ve included the
>> original pattern and revised language to make the review easy.
>>
>>
>>
>> Please take a look and reply if you agree with the proposed language
>> change, disagree, or would prefer something else.
>>
>>
>>
>> *Pattern: Visual cues*
>>
>> Summary of the proposed change – changed “user on the autism spectrum” to
>> “autistic user”
>>
>>
>>
>>    - Original: A user on the autism spectrum can identify graphical
>>    indicators and the use of color for grouping content but struggles with the
>>    labels and heading text.
>>    - Revised: An autistic user can identify graphical indicators and the
>>    use of color for grouping content but struggles with the labels and heading
>>    text.
>>
>>
>>
>> *Pattern: Use literal language*
>>
>> Summary of the proposed change – changed “a programmer with autism
>> spectrum disorder” to “an autistic programmer”
>>
>>
>>
>>    - Original: Many people do not understand non-literal content. For
>>    example, a programmer with autism spectrum disorder may not understand
>>    jokes and similes.
>>    - Revised: Many people do not understand non-literal content. For
>>    example, an autistic programmer may not understand jokes and similes.
>>
>>
>>
>> *Pattern: Explain implied content*
>>
>> Summary of the proposed change – changed “people with autism” to
>> “autistic people”
>>
>>
>>
>>    - Original: Similarly, a research study asked people with autism to
>>    watch a movie that had a lot of implied communication.
>>    - Revised: Similarly, a research study asked autistic people to watch
>>    a movie that had a lot of implied communication.
>>
>>
>>
>> *Pattern: Use clear step-by-step instructions*
>>
>> Summary of the proposed change – changed “people on autism spectrum” to
>> “autistic people”
>>
>>
>>
>>    - Original: This helps many people with cognitive and learning
>>    disabilities as well as people from different cultures, emerging markets,
>>    new users, and people on autism spectrum who may miss cultural context.
>>    - Revised: This helps many people with cognitive and learning
>>    disabilities as well as people from different cultures, emerging markets,
>>    new users, and autistic people who may miss cultural context:
>>
>>
>>
>> *Pattern: Provide flexible form inputs*
>>
>> Summary of the proposed change – changed “people on the autism spectrum”
>> to “autistic people”
>>
>>
>>
>>    - Original: This helps anybody with memory issues, people new to
>>    culture, and people on the autism spectrum who may miss cultural context.
>>    - Revised: This helps anybody with memory issues, people new to
>>    culture, and autistic people who may miss cultural context.
>>
>>
>>
>>
>>
>> Justine Pascalides
>>
>> Technology, Accessibility, and Innovation
>>
>> ETS | Assessment and Learning Technology Development
>>
>> Ph: 609-683-2213 <(609)%20683-2213> | Email: jpascalides@ets.org
>>
>>
>>
>>
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>