Re: A few thoughts on language.

Hi All,

This is a challenge. So much great input too. Valuable insight.
Jamie's reference to a definition being "diagnoses agnostic" is very
relevant, and from the other side terminology used should ideally be
context agnostic - as in mean the same thing regardless of context, to
avoid misinterpretation.

Lisa raised the point of how the term "Cognitive Impairment" is
becoming synonymous with age related cognitive decline in the US - I
was not aware of that. Terminology will be an issue in some form no
matter what words are used.

Thanks, Tony



On 17 July 2015 at 14:13, EA Draffan <ead@ecs.soton.ac.uk> wrote:
> +++1 on that one Ayelet and thank YOU as it is really good to debate these
> things and see them from all perspectives.
>
>
>
> Best wishes
>
> E.A.
>
>
>
> Mrs E.A. Draffan
>
> WAIS, ECS , University of Southampton
>
> Mobile +44 (0)7976 289103
>
> http://access.ecs.soton.ac.uk
>
> UK AAATE rep http://www.aaate.net/
>
> http://www.emptech.info
>
>
>
> From: Ayelet Seeman [mailto:ayelet.projects1@gmail.com]
> Sent: 17 July 2015 13:17
> To: Boland Jr., Frederick E. <frederick.boland@nist.gov>
> Cc: EA Draffan <ead@ecs.soton.ac.uk>; Rochford, John
> <john.rochford@umassmed.edu>; lisa.seeman <lisa.seeman@zoho.com>; Jamie
> Knight <Jamie.Knight@bbc.co.uk>; public-cognitive-a11y-tf@w3.org
> Subject: Re: A few thoughts on language.
>
>
>
> Thanks E.A. and Neil, and Fred for the definitions. :)
>
>
>
> Mike, I understand your point.
>
> But "disability" labels both the person and the environment, and
> "impairment" labels only the person. So I see why many people would prefer
> the term "impairment" and find it empowering, but I personally still prefer
> "disabled".
>
> It may well be preferable to use "impairments", also because we're trying to
> build support to minimise the disabling of the cognitive impairments in ICT.
>
>
>
>
>
>
>
> On Tue, Jul 14, 2015 at 9:48 PM, Boland Jr., Frederick E.
> <frederick.boland@nist.gov> wrote:
>
> Mild Cognitive Impairment:
>
> http://www.mayoclinic.org/diseases-conditions/mild-cognitive-impairment/basics/definition/CON-20026392
>
>
>
> Definition of Cognitive Impairment:
>
> https://answers.yahoo.com/question/index?qid=20070109142843AAirefp
>
>
>
> What is Cognitive Impairment?:
>
> http://www.wisegeekhealth.com/what-is-cognitive-impairment.htm
>
>
>
> Mild Cognitive Impairment Definition:
>
> http://www.medicinenet.com/script/main/art.asp?articlekey=34277
>
>
>
> Thanks Tim
>
>
>
>
>
> From: EA Draffan [mailto:ead@ecs.soton.ac.uk]
> Sent: Monday, July 13, 2015 8:58 AM
> To: Rochford, John; lisa.seeman; Jamie Knight
> Cc: public-cognitive-a11y-tf@w3.org
> Subject: RE: A few thoughts on language.
>
>
>
> I agree with all Jamie says and have found it hard to fit in with the W3C
> terminology but with the options available – thank you John  your last one
> is the shortest and ‘cognitive impairment’ is something we have been using
> despite its limitations
>
> Best wishes
>
> E.A.
>
>
>
> Mrs E.A. Draffan
>
> WAIS, ECS , University of Southampton
>
> Mobile +44 (0)7976 289103
>
> http://access.ecs.soton.ac.uk
>
> UK AAATE rep http://www.aaate.net/
>
> http://www.emptech.info
>
>
>
> From: Rochford, John [mailto:john.rochford@umassmed.edu]
> Sent: 13 July 2015 13:17
> To: lisa.seeman; Jamie Knight
> Cc: public-cognitive-a11y-tf@w3.org
>
>
> Subject: RE: A few thoughts on language.
>
>
>
> Hi Lisa and All,
>
>
>
> Perhaps this a good opportunity to simplify our task force’s name to the:
>
> ·       “Cognitive Impairments Accessibility Task Force”; OR
>
> ·       “Cognitive Impairment Accessibility Task Force”; OR
>
> ·       “Cognitive Impairments Task Force”; OR
>
> ·       “Cognitive Impairment Task Force”
>
>
>
> John
>
>
>
> John Rochford
>
> UMass Medical School/E.K. Shriver Center
>
> Director, INDEX Program
>
> Instructor, Family Medicine & Community Health
>
> www.DisabilityInfo.org
>
> Twitter: @ClearHelper
>
>
>
>
>
> From: lisa.seeman [mailto:lisa.seeman@zoho.com]
> Sent: Monday, July 13, 2015 6:52 AM
> To: Jamie Knight
> Cc: public-cognitive-a11y-tf@w3.org
> Subject: Re: A few thoughts on language.
>
>
>
> Hi Jamie
>
> This is an important issue, that we have been struggling with. The problem
> is that so many of the alternative terms are used to mean different things
> in different locations. For example LD means something else entirely in the
> US and Europe.
>
>
>
> Cognitive impairment is being used in a limiting way in the US - see
> http://www.cdc.gov/aging/pdf/cognitive_impairment/cogimp_poilicy_final.pdf
>
>
>
> I love the term neurodiversity. The problem is a lot of people do not know
> what it means.
>
> All the best
>
> Lisa Seeman
>
> Athena ICT Accessibility Projects
> LinkedIn, Twitter
>
>
>
>
> ---- On Mon, 13 Jul 2015 13:28:01 +0300 Jamie Knight<Jamie.Knight@bbc.co.uk>
> wrote ----
>
> Hello All,
>
> Hope everyone is well. I was wondering if it would be worth discussing how
> we use language.
>
> I see lots of references to 'cognitive disability'. I'm not sure that's the
> term we should be using.
>
> I have several impairments due to my autistic traits. I also have a number
> of abilities due to the same.
>
> However It's the environment that limits my ability to do things and thus my
> 'disability' is environmental.
>
> To use a physical metaphor. If someone in unable to walk (an impairment) and
> uses assistive technology (a wheelchair) and the environment is inclusive
> (lifts, ramps etc) then they are not disabled. The impairment becomes as
> relevant as their eye colour.
>
> In most of the issue papers I have seen we break down challenges by
> impairment. So perhaps we could adopt the term cognitive impairment.
>
> Additionally, for some the term is neurodiversity. ND respects someone for
> being different but also part of normal variation, it rejects the
> medicalisation of a set of common traits or reactions.
>
> I think It's a subtle but important change in language.
>
> I have impairments for sure. But that does not mean I should be disabled by
> the them.
>
> What do you think?
>
> Jamie + Lion
>
>
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Received on Monday, 20 July 2015 15:00:27 UTC