Re: ID replacing DS in COGA docs

My only issue  is will it effect the accuracy of the content and if it is worth the time. For the techniques we were confident that the content did not need to be altered and was still accurate - we could simply change the term Down syndrome for Intellectual disability .  But this is not true for  all the statements we make about DS in the user research. It will take new research. Is that a priority right now considering we are falling behind on our deadlines. 

For example (from the first section in :

Down syndrome also known as Trisomy 21, is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21. It is typically associated with physical-growth delays, characteristic facial features, and mild to moderate intellectual disability.

Down syndrome is best known for its effect on the development of literacy and language-related skills. Down syndrome is widely recognized as being a specific learning disability of neurological origin, which does not imply low intelligence or poor educational potential, and which is independent of race and social background.

A lot of the content is the the same with either term but  a lot simply is not. 

All the best

Lisa Seeman

Athena ICT Accessibility Projects 
LinkedIn, Twitter

---- On Mon, 13 Jul 2015 16:19:40 +0300 Debra Ruh Global<> wrote ---- 

I do agree with John. If we try to capture all variables we may miss some of them. Down syndrome is common but does display similar intellectual disabilities of other common and less common disabilities. It makes sense to use the broader term. Thanks for leading the conversation John. 

Debra Ruh, Ruh Global Communications & AXSChat 
Global Accessibility and Disability Inclusion Strategist 
G3ict Employability & Technology Chair(804) 986-4500

Follow Me on twitter,linked-in, facebook,pinterest, tumblr, Google+
And SKYPE at debraruh 

Proud to announce my book “Find Your Voice using Social Media”

My 2nd book "Uncovering Hidden Human Capital: How Leading Corporations Leverage Multiple Abilities in Their Workforce" will be published in 2015.

On Jul 13, 2015, at 8:33 AM, Rochford, John <> wrote:

  Hi All,
 As you may know Down Syndrome is one many intellectual disabilities. In some of our weekly teleconferences, I have suggested that we replace Down Syndrome with Intellectual Disability in our documentation, but cite Down Syndrome as one example of it. I know Debra supports this, and I believe Neil does too. 
 Several weeks ago, I replaced “Down Syndrome” with “Intellectual Disability” in the user-research text. I also created a gap analysis for Intellectual Disability (intending to replace the one for Down Syndrome) by basing it on the Down Syndrome one.
 That new content was not published because Lisa responded with “John, I think the idea was to change it in the techniques not the user research Let's check back with the group”.
 I think the replacement should happen in all our documentation, including in user research. I hope we can discuss this in today’s call, and come to a resolution. 
 John Rochford
 UMass Medical School/E.K. Shriver Center
 Director, INDEX Program
 Instructor, Family Medicine & Community Health 
 Twitter: @ClearHelper

Received on Monday, 13 July 2015 13:41:55 UTC