- From: Susanna Sansone <sa.sansone@gmail.com>
- Date: Sun, 21 Sep 2014 13:58:10 +0200
- To: Kerstin Forsberg <kerstin.l.forsberg@gmail.com>
- CC: Andrea Splendiani <andrea.splendiani@iscb.org>, Michel Dumontier <michel.dumontier@gmail.com>, Joachim Baran <joachim.baran@gmail.com>, HCLS <public-semweb-lifesci@w3.org>
- Message-ID: <541EBD52.7010103@gmail.com>
Thanks Kerstin, I am familiar with the CDISC RDF as we aim to reuse it in eTRIKS (where CDISC and we are a part of) and see how to best linked it to the LinkedISA work. This will also very much useful for the CEDAR centre. More off list to avoid spanning all. Thanks, Susanna On 21/09/2014 13:46, Kerstin Forsberg wrote: > Hi and Many Thanks Susanna for your email > > The coverage for CRL was metadata describing prospective clinical data > standards, both public such as CDISC and internal such as raw data > standards for a specific clinical project, as well as descriptions of > retrospectiive datasets.The projejct was stopped a couple of years > ago. For many reasons, one was the lack of an people in the clinical > trial domain with an engineering approach to data standards and also > challanges in the creating a user interface to support complex > configuration management. > > I'm actively engaged in several other ISO11179 related intitatives: > The IMI EHR4CR project has build a data element editor. And in the > FDA/PhUSE Semantic Technology project we've create a small metamodel > schema for data elements to represent all CDISC standards as is in RDF > https://github.com/phuse-org/rdf.cdisc.org . And there's is a Data > Element Exchange (DEX) IHE profile > http://wiki.ihe.net/index.php?title=Data_Element_Exchange intative > > I'm also trying to keep an eye on the RDF Shape dsicussions as the > topic of representing value sets seems, IMHO, to be a shared issue > across CDISC, HL7 and others, see > http://kerfors.blogspot.se/2013/10/the-future-of-cdisc-cts.html > > I think the versions/variants problem is a common issue, not yet > addressed, across all of these, Hence my response to Andrea's eamil > > I would like to learn more about RDA's and related intitatives related > to this. I'll catch up on the material you linked to. > > Thanks > Kerstin > > I'm just now follwoing you and the others on the nice #RDAplenary tag > on Twitter :-) > > 2014-09-21 13:30 GMT+02:00 Susanna Sansone <sa.sansone@gmail.com > <mailto:sa.sansone@gmail.com>>: > > Hi Kerstin, > /(sl//ightly diverging from the subject of this tread)/ > I am not sure which data standards will you cover in the registry > and wonder if there is a opportunity for collaboration. You may be > familiar with http://www.biosharing.org/ where registering > data/metadata reporting standards is core; this work is embedded > both into elixir activities, IMI eTRIKS, the new NIH CEDAR centre > and RDA (we have a working group with publishers, see: > https://rd-alliance.org/sites/default/files/case_statement/BioSharing_RDA_WG_case_satement_submitted_8Aug2014.pdf) > to help stakeholders to make informed decisions on coverage, use > and popularity of these reporting standards. Want you may need > could be complementary to what we do/aim to do, but happy to > discuss options for collaborations. > Thanks, > Susanna > > > > On 21/09/2014 12:49, Kerstin Forsberg wrote: >> Hi Andrea, >> in an earlier attempt to design and launch a Metadata Registry >> for clinical trial data, called Clinical Reference Library1 ). To >> capture and manage descriptions of versions of clinical trial >> data standards, and of variants of actual clinical trial >> datasets, we applied the software pattern called Facade 2). We >> used it to manage variants of metadata items on different >> gramualrity (e.g. data element, value domain, datasets) within a >> shared facade. It required a strong configuration management >> approach and hence an standard enginering approach similar as to >> software engineering. >> >> Cheers >> Kerstin >> >> 1) >> http://www.slideshare.net/kerfors/designing-and-launching-the-clinical-reference-library >> (slide 2 highlights the Realities of clinical trials data: the >> variances, changes, diversities and gaps) >> 2) http://en.wikipedia.org/wiki/Facade_pattern >> >> >> 2014-09-21 12:21 GMT+02:00 Andrea Splendiani >> <andrea.splendiani@iscb.org <mailto:andrea.splendiani@iscb.org>>: >> >> Hi, >> >> I may re-use some bits of it, but overall I am dealing with >> quite a different thing. >> I don't have "publications", I have evolving information >> sets. Provenance/evidence and the like are there, but not so >> fine-grained (e.g.: I may have the whole ontology with the >> same provenance/evidence, not a few statement). In same case >> (small subset) I have some more fine-grained information. In >> this case I may pickup something from nanopubs, though I have >> a string focus on capturing evolution of knowledge rather >> than "facts" (e.g.: some facts gets validated). >> There is also an are I don't know how to fit in, from the >> nanopubs point of view, because facts come with a history of >> discussion behind. >> Another aspect that I think it's different is, whatever I >> have, it's id centric, and entity centric in the specific >> (like a dictionary). >> So identifiers (and the relations between identifiers and >> identifiers of versions) comes first. >> >> best, >> Andrea >> >> >> Il giorno 19/set/2014, alle ore 20:07, Michel Dumontier >> <michel.dumontier@gmail.com >> <mailto:michel.dumontier@gmail.com>> ha scritto: >> >> > Hi, >> > I suggest nanopublications to track versioning for assertions >> > http://www.nanopub.org/guidelines/ >> > >> > m. >> > >> > On Fri, Sep 19, 2014 at 9:58 AM, Joachim Baran >> <joachim.baran@gmail.com <mailto:joachim.baran@gmail.com>> wrote: >> >> Hi! >> >> >> >> On 19 September 2014 09:45, Andrea Splendiani >> <andrea.splendiani@iscb.org <mailto:andrea.splendiani@iscb.org>> >> >> wrote: >> >>> >> >>> When a concept change meaning, it changes id ;) >> >> >> >> Aha! I think it might not always change ID! ;) >> >> >> >> Best wishes, >> >> >> >> Kim >> >> >> > > -- > Susanna-Assunta Sansone, PhD > uk.linkedin.com/in/sasansone <http://uk.linkedin.com/in/sasansone> > > University of Oxford e-Research Centre > Associate Director and PI > isacommons.org <http://isacommons.org> |biosharing.org <http://biosharing.org> > > Nature Publishing Group > Consultant, Scientific Data > nature.com/scientificdata <http://nature.com/scientificdata> > -- > > -- Susanna-Assunta Sansone, PhD uk.linkedin.com/in/sasansone University of Oxford e-Research Centre Associate Director and PI isacommons.org | biosharing.org Nature Publishing Group Consultant, Scientific Data nature.com/scientificdata --
Received on Sunday, 21 September 2014 11:53:48 UTC