Re: ClinicalTrial Schema

Hi Nolan,
Hi all,
Nice raising topic here....
I support this from the beginning, ... in the past there was a idea in this
sense but not enough community support and no clear support from
clinicaltrial.gov
If now we have a real interest and use cases.... please take a lead and we
will organize a discussion through https://www.w3.org/community/schemed/

Regards,

Best regards

Marc Twagirumukiza

~ScheMed W3C Group





Le dim. 24 mars 2019 à 11:20, Paola Di Maio <paola.dimaio@gmail.com> a
écrit :

> Dear Nolan
> Thanks for sharing. I am working on Research Protocols, and feel the same
> I wonder if you would consider a research protocol ( biomed research
> protocol, but there  I wonder if we should generalize ) a similar enough
> case to a clinical trial and should we join forces, or
> not . Let me know what you think
> PDM
>
> On Sun, Mar 24, 2019 at 8:57 AM Nolan Nichols <nichols.nolan@gene.com>
> wrote:
>
>> Hi All,
>>
>> I've started looking into creating a schema of clinical trial metadata
>> using schema.org and mapping instances from public repositories (e.g.,
>> clinicaltrials.gov), to a clinical trial schema that could then be
>> published to datacommons.org.
>>
>> From what I see, it looks like a good starting point would be to build on
>> what has already been defined in the health-lifesci group with
>> schema.org:MedicalTrial <https://health-lifesci.schema.org/MedicalTrial>
>> .
>>
>> There are a handful of attempts at doing something similar elsewhere,
>> such as:
>>
>> - Wikidata ClinicalTrial
>> <https://www.wikidata.org/wiki/Wikidata:WikiProject_Medicine/Data_models/Trials>
>> - Clinical Trial Data as RDF
>> <https://github.com/phuse-org/CTDasRDF/blob/master/doc/HandsOnCreateTriplesFromOWL.md#more-ts-mapping>
>>
>> - Open Trials <https://opentrials.net/>
>> - Linked CT <http://linkedct.org/> - broken ;-(
>>
>> While those efforts capture semantics, others provide a pretty clean
>> tabular representation of clinical trial metadata like the AACT database
>> <https://aact.ctti-clinicaltrials.org/>.
>>
>> I'd love to start a conversation about how we can create a schema for
>> clinical trials that fits into the schema.org vision and can publish
>> useful information like what is in the AACT database as linked data.
>>
>> I took the humble approach of defining a few terms that would extend the
>> schema of datacommons.org to capture just a single attribute of a trial
>> (i.e., phase). I submitted this as a PR
>> <https://github.com/google/datacommons/pull/41>.
>>
>> I would love to get feedback on how I can move this idea forward and work
>> with this community to define a schema that could be used to publish
>> information about clinical trials.
>>
>> Cheers,
>>
>> Nolan
>>
>> --
>> Nolan Nichols, PhD
>> Bioinformatics & Computational Biology
>> Genentech, Inc.
>> nichols.nolan@gene.com
>> https://orcid.org/0000-0003-1099-3328
>>
>>