RE: ID replacing DS in COGA docs


Its a new term to me, in the UK we use the term Learning Disability as an umbrella term for Down Syndrome etc.

With my last email in mind, perhaps Learning Impairment would be better, but that not a term i have ever seen used.

Terms really are an interesting topic!


Jamie + Lion
From: Rochford, John []
Sent: 13 July 2015 13:33
Subject: ID replacing DS in COGA docs

Hi All,

As you may know Down Syndrome is one many intellectual disabilities. In some of our weekly teleconferences, I have suggested that we replace Down Syndrome with Intellectual Disability in our documentation, but cite Down Syndrome as one example of it. I know Debra supports this, and I believe Neil does too.

Several weeks ago, I replaced “Down Syndrome” with “Intellectual Disability” in the user-research text. I also created a gap analysis for Intellectual Disability (intending to replace the one for Down Syndrome) by basing it on the Down Syndrome one.

That new content was not published because Lisa responded with “John, I think the idea was to change it in the techniques not the user research Let's check back with the group”.

I think the replacement should happen in all our documentation, including in user research. I hope we can discuss this in today’s call, and come to a resolution.


John Rochford<>
UMass Medical School/E.K. Shriver Center
Director, INDEX Program
Instructor, Family Medicine & Community Health<>
Twitter: @ClearHelper<>
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Received on Monday, 13 July 2015 12:47:47 UTC