RE: early impressions on taxonomies and further issues with dementia

+1

Best wishes
E.A.


From: Steve Lee [mailto:steve@opendirective.com]
Sent: 28 April 2015 14:04
To: Rochford, John
Cc: Ayelet Seeman; public-cognitive-a11y-tf@w3.org
Subject: Re: early impressions on taxonomies and further issues with dementia

+1, based on that non-secret bit alone :)

Steve Lee
OpenDirective http://opendirective.com


On 28 April 2015 at 13:52, Rochford, John <john.rochford@umassmed.edu<mailto:john.rochford@umassmed.edu>> wrote:
Hi Ayelet & All,

Anyone may use accessible communication technologies in a harmful or illegal way. I don’t think we should address that because someone might do so as a result of a disability.

There are other reasons why I think we should not address this issue, which I would be pleased to share if necessary.

John

John Rochford
UMass Medical School/E.K. Shriver Center
Director, INDEX Program
Instructor, Family Medicine & Community Health
http://www.DisabilityInfo.org

Twitter: @ClearHelper
 <http://www.facebook.com/pages/New-England-INDEXShriver-CenterUMass-Medical-School/227064920160>

From: Ayelet Seeman [mailto:ayelet.projects1@gmail.com]
Sent: Monday, April 27, 2015 11:30 AM
To: public-cognitive-a11y-tf@w3.org
Subject: early impressions on taxonomies and further issues with dementia

I looked at the WHO taxonomies for the aging and dementia user group, and it looks like there will be a lot of work to harmonize them, and like some of the data is outdated.

Also, I think we need to better address the problem of aggression and inappropriate behavior by people with dementia with communication technologies. In some types of dementia, such as behavioral variant frontotemporal dementia (BvFTD)  the first symptom is a change in the personality, including disinhibition and lack of empathy. As a result, they may use accessible communication technologies in a harmful way, possibly to an extent of being illegal.

ideas anyone?

Ayelet
 <http://www.facebook.com/pages/New-England-INDEXShriver-CenterUMass-Medical-School/227064920160>