Fwd: Re: Comments on W3C content on dementia

Dear Amanda and  Emma,



Thank you for taking the time to review and comment on  Making content usable for people with cognitive and learning disabilities. Please see our responses in bold to your comments broken out below. You can review the changes we madea on our https://raw.githack.com/w3c/coga/consistency_checks/content-usable/index.html#help-the-user-stay-safe-pattern.



With thanks,



The Cognitive and Learning Disabilities Task Force



1. We have found trust of the device or system to be integral. This could

   translate to the importance of technologies that communicate safe or unsafe

   sites to visit.



Content usable focuses on  making web content usable rather than systems and devices. From a content standpoint, we believe we have partially addressed  trust within 4.5.11 Pattern: Keep Users' Information Safe and Help Users Understand Known Risks. 



We appreciate this comment because it let us know we need to better the scope 4.5.11 in content usable as well as the document as a whole. And the scope within the context of a full system. 



There might be technologies that help users understand what is safe or unsafe Sites would be an API or add on, that the user chooses to add. As such it can be supported by the phttps://www.w3.org/TR/coga-usable/#pattern-enable-apis-and-extensionsWould you please send us the research you are referencing so we can add this?



2.  Some of our participants put all of their payments on auto-pay so as not to forget a bill payment and then they just verify their credit card.



We think there is a potential gap here but it would help us if you could share research and more details about this topic. A more specific example within a website context would be helpful. Because of our focus on web content we think this is out of our scope but please let us know if we misunderstood.



3.  Individuals have shared that when a screen is not visible, it is essentially gone for them. Therefore, seeing all possible documents at once is important to reduce confusion as opposed to folders.



We would like to take this into consideration and explore how to fit it in. Would you please send the research you are referencing? Additional examples within a website context would be helpful.



4.  Relatedly, spatial representations can be very important for technology use. For example, we have spoken to people that use spatial representations on their desktops as a sort of filing system.



We have createdhttps://github.com/w3c/coga/issues/279 to explore how to add this. If you have any additional research we can reference that would be helpful. Thank you for pointing out this gap. 



5. Everything that the document notes for MCI could be said for people with dementia as well, only magnified.  In terms of the characteristics of dementia, we think that the following

points are important to include:

It is great that the report describes the different types of dementia.


   Though there is tremendous variability even within a condition, it may be important to note that different types of dementia can affect individuals differently and uniquely (Meiland et al. 2017; Scherer et al. 2012).ough cognitive changes are the most common changes discussed with dementia, there is an emerging understanding of the other kinds of changes that people experience, that will surely impact their technology use. Many  of the points below come from a document (attached) written by a dementia advocate:







While we are trying to ensure these patterns support individuals with a wide range of cognitive and learning disabilities, we are trying to avoid a deep discussion of disability in this document. This is an evolving document.  We will integrate this research back into our research documentation when we circle back to them. Thank you very much for the references.



6. Sensitivity to loud and complex environments (overloaded by over stimulus) often with heightened sensitivity to sound



This is partially addressed in 3.6 Help Users Maintain Focus but we also added it to 4.6.1 LImit interruptions.



7. Avoid busy patterns because they are visually confusing



This is partially addressed in 3.5 Help Users Focus but we also added it to the design pattern 4.4.11 Ensure Foreground Content is not Obscured by Background



 8. “brain blindness”: where the person has capable vision but the brain

      is no longer able to process or find the right match for what they’re

      seeing. Contrast is very important because of changes in vision as a result

      of certain dementias. Color orientation is not always reliable for people with dementia

      because they may associate colors differently or not understand what the

      color is meant to represent



We are adding this in several places in the current version but will explore this further, along with low vision experts, for the next version and for WCAG 3.0. We have created issue #137 to track this. We would appreciate anyone who can point us to research in this area. We would also welcome any and all assistance in this work













---- On Fri, 21 Aug 2020 16:31:33 +0300 Amanda Lazar <mailto:lazar@umd.edu> wrote ----


Dear Lisa,



Thank you very much for this invitation to submit comments. We have just done so on the listserv.



The draft looks great and we look forward to using it in our own work!



Best,

Amanda



On Mon, Jul 27, 2020 at 11:25 AM lisa.seeman <mailto:lisa.seeman@zoho.com> wrote:

Hello Amanda and Emma



We would love your comments on our new draft of:

  

Making content usable for people with cognitive and learning disabilities at  https://www.w3.org/TR/coga-usable/



This document is for people who make web content, including web applications. It focuses on meeting the needs of people with cognitive and learning disabilities. It covers:

aims and objectives for usable content


design patterns (ways) to make content usable


including users in research, design, and testing activities


personas and user needs



Note, this may be the final review before this document is formally published as a W3C note  and supplement to WCAG.



It is published by The Cognitive and Learning Disabilities Accessibility Task Force, Accessibility Guidelines Working Group, and Accessible Platform Architectures Working Group and is currently a wide review working draft.



If you have comments, please https://github.com/w3c/coga/issues/new or send email to mailto:public-cognitive-a11y-tf@w3.org by the 4th September 2020.

As always, feel free to ask me any questions etc. (We will write to you an additional email about your specific comments)





All the best

Lisa Seeman

http://il.linkedin.com/in/lisaseeman/, https://twitter.com/SeemanLisa







---- On Wed, 06 May 2020 00:00:16 +0300 Amanda Lazar <mailto:lazar@umd.edu> wrote ----



Hi Lisa,



Thank you very much for your email. Emma and I have spent some time chatting about this, and while this would be an incredible opportunity, we are currently unable to commit to weekly involvement due to other obligations.



However, we would love to continue providing input into any drafts where we would be helpful. We can start by giving some feedback on the draft you sent in this email.



As for the personalization/adaptation task force, we have just finished analyzing data on sensory adaptations for people with mild to moderate dementia that support focus and comprehension. So we would be happy to offer comments to this task force as well, if that would be helpful.



Best,

Amanda




On Tue, Apr 28, 2020 at 11:30 AM lisa.seeman <mailto:lisa.seeman@zoho.com> wrote:



Hi Amanda and Emma

 

Firstly, I apologizes for the delay in getting back to you. Your message went into the document issue list, and we are just finishing off the next version and checking all the comments from the last version. 



Are you still interested in joining the task force? We would be delighted for your input. Participation 

To join the Cognitive A11Y TF, you would need to join either the Accessible Platform Architectures (APA) Working Group or the Web Content Accessibility Guidelines Working Group (AG WG). Participants are expected to actively contribute about  4 hours per week. You can see how to Join AG at https://www.w3.org/WAI/GL/participation



We could also have a call next week to discuss what is involved and I can help you though the process. We can probably get invited expert status if necessary.



In the mean time we have a new draft of https://w3c.github.io/coga/content-usable/. We  would love to hear any comments.



We also have a task force  on personlization for people with cognitive disabilities. They are working on a specification/ vocabulary to enable adaption to the user. If you are interested in that I would be happy to talk you though that work as well.





All the best

Lisa Seeman

http://il.linkedin.com/in/lisaseeman/, https://twitter.com/SeemanLisa







---- On Wed, 22 Jan 2020 08:14:02 +0200 Amanda Erin Lazar <mailto:lazar@umd.edu> wrote ----



Hi Rachael and the W3C task force,



I wanted to follow up on my email with Rachael with some thoughts from myself and Emma Dixon, a PhD student leading our project on designing technology for people across the spectrum of dementia. The content below is based on our research as well as research and advocacy by people with dementia.



We are giving these ideas to you below as a first step, but we’d be more than happy to be involved further in any way, or give you more content/edited content/anything else. We are also in contact with some leading members (with and without dementia) of different dementia groups (including Dementia Action Alliance, Dementia Alliance International, and Innovations in Dementia) -  we’d be happy to connect you with these groups or even to work with them ourselves in iterating on any of this. Just please let us know if you see any way we can contribute further!



Best,

Amanda and Emma



--



We have some suggestions of additional dimensions that we have found to be very important for technology use for people with mild to moderate dementia, that could potentially be included in the personas or the section on ICT challenges:

We have found trust of the device or system to be integral. This could translate to the importance of technologies that communicate safe or unsafe sites to visit.


Some of our participants put all of their payments on auto-pay so as not to forget a bill payment and then they just verify their credit card statement.  


Individuals have shared that when a screen is not visible, it is essentially gone for them. Therefore, seeing all possible documents at once is important to reduce confusion as opposed to folders.


Relatedly, spatial representations can be very important for technology use. For example, we have spoken to people that use spatial representations on their desktops as a sort of filing system...





Everything that the document notes for MCI could be said for people with dementia as well, only magnified. 



In terms of the characteristics of dementia, we think that the following points are important to include:

It is great that the report describes the different types of dementia. Though there is tremendous variability even within a condition, it may be important to note that different types of dementia can affect individuals differently and uniquely (Meiland et al. 2017; Scherer et al. 2012). 


Though cognitive changes are the most common changes discussed with dementia, there is an emerging understanding of the other kinds of changes that people experience, that will surely impact their technology use. Many of the points below come from a document (attached) written by a dementia advocate:


Sensitivity to loud and complex environments (overloaded by over stimulus) often with heightened sensitivity to sound


“brain blindness”: where the person has capable vision but the brain is no longer able to process or find the right match for what they’re seeing. 


Contrast is very important because of changes in vision as a result of certain dementias 


Color orientation is not always reliable for people with dementia because they may associate colors differently or not understand what the color is meant to represent 


Avoid busy patterns because they are visually confusing








-- 

Amanda Lazar | Assistant Professor 










(she/her/hers)
University of Maryland | College of Information Studies (iSchool)
Hornbake South | Room 2117D | College Park, MD 20742
http://www.ischool.umd.eduhttp://www.ischool.umd.edu | mailto:mhinckle@umd.edu | (301) 405-8550





























-- 

Amanda Lazar | Assistant Professor 










(she/her/hers)
University of Maryland | College of Information Studies (iSchool)
Hornbake South | Room 2117D | College Park, MD 20742
http://www.ischool.umd.eduhttp://www.ischool.umd.edu | mailto:mhinckle@umd.edu | (301) 405-8550

























-- 
Amanda Lazar | Assistant Professor 










(she/her/hers)
University of Maryland | College of Information Studies (iSchool)
Hornbake South | Room 2117D | College Park, MD 20742
http://www.ischool.umd.eduhttp://www.amandalazar.net | mailto:mhinckle@umd.edu | (301) 405-8550


















FYI, this was also sent to Amanda and Emma

Received on Monday, 29 March 2021 10:01:47 UTC