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Re: Using SEER Data

From: Alan Ruttenberg <alanruttenberg@gmail.com>
Date: Fri, 5 Oct 2007 07:53:03 -0400
Message-Id: <27D89AE2-2F18-47B4-9854-0B09F605A1D3@gmail.com>
Cc: public-semweb-lifesci hcls <public-semweb-lifesci@w3.org>
To: Matt Williams <matthew.williams@cancer.org.uk>

[cc changed to public-semweb-lifesci]

We could distribute a script that does the conversion to RDF so that  
individuals who wanted to use it could still get it themselves and  
put it into a local store.

There are two possible benefits of working with the data: 1) Learning  
something from it 2) Adding it to the pool of rdf that is in the demo

We can still perhaps benefit from 1), even if 2) is not possible -  
but you tell us whether you think that is of value...

-Alan

On Oct 5, 2007, at 4:26 AM, Matt Williams wrote:

>
> I've had a very quick look at this. It might be salutary to read  
> some parts of the data-user agreement.
>
>
>
> 1. You will not use nor permit others to use the data in any way  
> other than for statistical reporting and analysis for research  
> purposes. The SEER Program must be notified if it is discovered  
> that there has been any other use of the data.
>
> <snip>
>
> 3. You will not attempt to link nor permit others to link the data  
> with individually identified records in another data base.
>
> <snip>
>
> 6. You will not release nor permit others to release the data in  
> full or in part to any person except with the written approval of  
> the SEER Program. In particular, all members of the research team  
> who have access to the data must have signed data-use agreements.
>
> <snip>
>
> 7. You will use appropriate safeguards to prevent use or disclosure  
> of the information other than as provided for by this data-use  
> agreement. If accessing the data from a centralized location on a  
> time sharing computer system or LAN with SEER*Stat or another  
> statistical package, you will not share your logon name and  
> password with any other individuals. You will also not allow any  
> other individuals to use your computer account after you have  
> logged on with your logon name and password.
>
>
>
> I don't know to what extent this therefore causes problems with the  
> idea of sharing the data; while it can still be copied into an rdf  
> format, doing so and then keeping it on a local server seems  
> (mostly) pointless.
>
>
> -- 
> http://acl.icnet.uk/~mw
> http://adhominem.blogsome.com/
> +44 (0)7834 899570
>
Received on Friday, 5 October 2007 11:53:18 GMT

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