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This document provides background research about user groups with cognitive disabilities and the challenges that they face when using Web technologies.
This document is analyses the current situation of Web Accessibility for people with cognitive disabilities, in terms of user groups. We aim to identify and describe the current situation and so that, at a later stage, we will be able to contrast it to what we want to happen,identify gaps and potentials and to suggest techniques and create a roadmap for improving accessibility for people with learning disabilities and cognitive disabilities. This document is not a specification (non-normative).
This section describes the status of this document at the time of its publication. Other documents may supersede this document. A list of current W3C publications and the latest revision of this technical report can be found in the W3C technical reports index at http://www.w3.org/TR/.
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This document was published by the Web Content Accessibility Guidelines Working Group as an Editor's Draft. If you wish to make comments regarding this document, please send them to public-comments-wcag20@w3.org (subscribe, archives). All comments are welcome.
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This document is governed by the 1 August 2014 W3C Process Document.
This section is non-normative.
This document provides background research on user groups with learning disabilities and cognitive disabilities and the challenges they face when using the Web Technologies. We aim to identify and describe the current situation so that subsequent publications can contrast it to what we want to happen.
This document will be used as a base document to enable the task force to perform a gap analysis, discussion, suggest techniques and create a road-map for improving accessibility for people with learning disabilities and cognitive disabilities.
It is currently at is first draft and we are asking for comments. Please let us know if you are aware of omissions.
This document is important because enabling people with learning and cognitive disabilities to use the Web is of critical importance to both the individuals and to society.
More and more the Internet and ICT has become the main way people stay informed and current on news and health information, keep in touch with friends and family, and provides independence, convenient shopping, and other. People who cannot use these interfaces will have an increased feeling of being disabled and alienation from society.
Further, with the advent of the Web of Things everyday physical objects are connected to the Internet and have ICT interfaces. Being able to use these interfaces now is an essential component of allowing people to maintain their independence, stay in the work force for longer and stay safe.
Consider that the population is aging. By 2050 it is projected there will be 115 million people with dementia worldwide. It is essential to the economy and society that people with mild and moderate levels of dementia stay as active as possible and participate in society for as long as possible. However, at the moment even people with only a mild cognitive decline find may standard applications impossible to use. That means more and more people are dependent on care givers for things that they could do themselves, increasing the crippling cost of care and reducing human dignity.
We therefore invite you to review this draft, comment and consider how your technologies and work may be effected by these issues.
There is a huge number of cognitive disabilities and variations of them. If we attempt an analysis of all the possibilities, the job will be too big and nothing will be achieved. Therefore we are adopting a phased approach, selecting in phase one a limited scope of eight diverse disabilities, and hope to achieve something useful within that scope. Also note that helping users improve skills, and emotional disabilities, are out of scope for phase one. We anticipate this analysis will continue to a second or third phase where more user groups are analyzed and the existing analyses are updated with new research and with new technologies and scenarios.
Different people with cognitive disabilities may have problems in the following arias:
For more information please see section 4.
It is important to note that people may have limitations in one area and not in other areas. For example, a dyslexic may have above average reasoning but impaired visual memory and literacy skills. Someone with Down Syndrome may have an above average visual memory but impaired judgment.
Include: mapping of disabilities and cognitive function table.
User group research modules follow. This is Phase 1. The group hopes to add more groups such as effects of Post-Traumatic Stress Disorder (PTSD) on cognitive function.
Dyslexia is a syndrome best known for its affect on the development of literacy and language related skills. There are a number of different definitions and descriptions of dyslexia. The syndrome of dyslexia is now widely recognized as being a specific learning disability of neurological origin that does not imply low intelligence or poor educational potential, and which is independent of race and social background.
This section is a technical reference. Jump to the next section on #Symptoms for more practical information.
Overview: Mainstream credible research in behavioral neurology agrees that Dyslexia is a consequence of an altered neural substrate, in the various regions of the brain which are responsible for the reading process. fMRI scans (18, 19) have show that different subgroups of dyslexia exhibit under activity in areas such as:
Other studies #42 using PET have shown less activation than the controls in left inferior frontal gyrus (BA areas 45/44/47/9), left inferior parietal lobule (BA area 40), left inferior temporal gyrus/fusiform gyrus (BA areas 20/37) and left middle temporal gyrus (BA area 21). There are also studies with different approaches such as identifying ectopias clustered round the left temporoparietal language areas. #44
The different schools of research have championed the different neurological bases of dyslexia, and its resulting subgroups of dyslexia.
(Main research - see Tallal et all (32)) This body of research has shown that many dyslexics have defects in the left auditory cortex. The auditory cortex is responsible for sound naming and identification and temporal processing (such as interval, duration, and motion discrimination).
Note that dyslexia does not affect hearing, but the identification and differentiation of sounds.
(Main school of research Livingstone (1993) and Martin and Lovegrove 1988) )(see 9, 15) Dyslexics have reduced synaptic activity in the V5 area (also known as visual area MT, middle temporal), is a region of extra-striate visual cortex that is thought to play a major role in the perception of motion.
V5 is part of the broader "magno-cellular -- large cell -- system" that processes fast-moving objects, and brightness contrasts. One interpretation is that a specific magno-cellular cell type develops abnormally in people with dyslexia (3).
For results of clinical tests see (1)
Main research from Shaymitz (1998) and Rumsy (1996), (see 5, 10,11, 14 –17) The language regions in the superior temporal gyrus (Wernike's area) and striate cortex are found to underachieve in the dyslexic. These areas respond to simple phoneme processing tasks. (Areas that respond to more complex language tasks, an anterior region, the IFG, displayed relative over activation in dyslexics.)
Games involving nonsense words, rhyme, and sound manipulation will be enhanced by special auditory effects: The consonants are recorded louder while the adjacent vowel is lengthened and its sounds softened. All games are carefully leveled by the complexity of the manipulations involved. (For results of clinical tests see Ojemann 1989, Bertoncini et al 1989 ).
Main research from Leon (1996) and Shaymitz (1998) (see 8, 22, 24, 28,30)
The angular gyrus, a brain region considered pivotal in carrying out cross-modal (e.g., vision and language) associations necessary for reading, is involved. The current findings of under activation in the angular gyrus of dyslexic readers coincide with earlier studies of those who lost the ability to read due to brain damage centered in that same area of the brain.
The ability to link visual stimuli to auditory interpretation can be stimulated by Multimedia implementation of the coming together of these separate disciplines. Activities are all carefully leveled to correlate the child's current ability level.
(Main school of research Livingstone (1993) and Martin and Lovegrove 1988) )(see 9, 15) Dyslexics have reduced synaptic activity in the V5 area.
V5 is part of the broader "magno-cellular -- large cell -- system" that processes fast-moving objects, and brightness contrasts. One interpretation is that a specific magno-cellular cell type develops abnormally in people with dyslexia (3).
For results of clinical tests see (1)
(Main school of research Beneventi et al.2008)
Reduced activity in the pre-frontal and parietal cortex may result in working memory deficits. #40
Common symptoms are:
Dyslexics do not tend to automatize skills very well, and a high degree of mental effort is required in carrying out tasks that non-dyslexic individuals generally do not feel requires effort. This is particularly true when the skill is composed of several sub-skills (e.g. reading, writing, driving).
It must be emphasized that individuals vary greatly in their learning difficulties. Key variables are the severity of the difficulties and the ability of the individual to identify and understand their difficulties and successfully develop and implement coping strategies.
By adulthood, many people with dyslexia are able to compensate through technology, reliance on others and an array of self-help mechanisms - the operation of which require sustained effort and energy. Unfortunately, these strategies are prone to break down under stressful conditions which impinge on areas of weakness.
People are particularly susceptible to stress (compared with the ordinary population) with the result that their impairments increase.
A is a high school student with dyslexia. Although he can read his level is slow and he finds it difficult. A has a school project and needs to do online research. A does not use a screen reader as they are afraid that that will stop him reading and improving his skills. A needs to be able to find the content he needs easily, both finding the right resource and the right information inside that resource with minimal reading, and will then read the sections that he needs. He will do a web search, and a quick review of different pages to find the pages he needs.
Step | Challenge |
---|---|
Search query | |
Scanning results | |
Doing a short review of different options and finding the most appropriate | |
Finding the right content in the right document | |
Reading the right content | |
Collecting the information | |
Copying for Citing the resources and collecting them with the right information | |
Saving the work | |
Putting it together and writing the paper | Out of scope of this use case |
B is a mother with young children. She has dyslexia. B reads the words, and then stops to understand them. B is also a slow reader. B receives many emails and important emails often are below or behind the scroll bar. Reading the summaries of each email takes time. B has set her email app to tag emails from her child's school as important. However B still needs to differentiate between emails from her children’s school that are crucial and emails that are just informative. B needs to be able to find the important content (such as school finishing at a different time next Monday) in a long school newsletter.
B’s email application changes and she no longer knows how to tag senders as important. At the same time her child starts at a new school. She has difficulty finding the information on how to tag emails from the new school as important. Also the school starts sending many emails about projects they are doing and what is happening in class, so she does not have time to read each email from them as soon as it arrives. She postpones this task and important emails get lost.
Step | Challenge |
---|---|
Finding out how to tag/label this from a sender as important (first time) | |
Remembering the process (re-finding it next time) | |
Tagging/labeling the new teacher | |
Identifying important emails from the teacher and distinguishing them from general interest emails | |
Finding important content in long emails |
C is an adult living alone. He has dyslexia. C has impaired vision and auditory memory, and finds remembering sequences extremely challenging. C has a garden with an automatic watering system with a one line ICT (electronic) interface. The interface is not user friendly. C needs to select what sprinkler he is setting using an arrow key, then needs to set the first time it should go on, (using the arrow key in the number mode) press enter, and then set the duration the sprinkler should run. He then needs to repeat the steps for the second time (or leave it blank). He then needs to repeat the process for the next sprinkler in the correct order. C has been shown how to use the system many times, however each time the system needs to be adjusted he makes mistakes and gets confused. Ten years later C still needs to call the gardener to change the settings and is consonantly relearning the interface.
Step | Challenge | |
---|---|---|
learning the steps involved | Learning the sequence | |
Performing the steps correctly | Remembering the sequence. Performing it in the correct order | |
Undoing mistakes | Remembering what point he is at in the sequence. Going back a step and tracking the step he is at now. | - |
Dyslexics tend to use mainstream technologies to help them. For example, using a Word-processor's spell checker. They may use free screen readers or screen readers that highlight text as they read. They may use assistive technology such as Dragon or a Daisy reader, although this seems to be used more as a teaching aid and not for typical Web access. Special software to help dyslexics includes Text Help.
Content made for people with dyslexia tends to have
In general, content for dyslexics helps the user find the text they are looking for via visual aids, and reduces the need to read though irrelevant text to find the information that they are looking for.
Assistive technologies include (incomplete list):
There are organizations who have produced guidelines for creating content for people with dyslexia, such as The British Dyslexia Association guidelines, and The Irish Dyslexia Association
This Guide is in three parts: 1. Dyslexia Friendly Text. 2. Accessible Formats. 3. Website design.
The aim is to ensure that written material takes into account the visual stress experienced by some dyslexic people, and to facilitate ease of reading. Adopting best practice for dyslexic readers has the advantage of making documents easier on the eye for everyone.
Note: You can set spell checker in MS Word to automatically check readability. MS Word will then show your readability score every time you spell check.
Use an accessible format so that content can be read by screen reading software.
Research shows that readers access text at a 25% slower rate on a computer. This should be taken into account when putting information on the web. When a website is completed, check the site and information for accessibility by carrying out these simple checks.
Tips found across the web include http://www.dyslexia.com/library/webdesign.htm
Read more: http://www.dyslexia.com/library/webdesign.htm#ixzz2yAl09G77
Read more: http://www.dyslexia.com/library/webdesign.htm#ixzz2yAjpgQlL
WCAG does help in that content can be used by a screen reader and headings should be used. Many of the most useful checkpoints are AAA and hence not implemented or are advisory techniques and hence, likewise, not adopted.
AA level conformance to WCAG does not significantly help reduce cognitive load or reduce dependency on text by formatting and pictorial aids. Other guidelines(non W3C such as British Dyslexia Association Guidelines) fill in some of the gaps in WCAG.
None of the reviewed guidelines help ICT interfaces of voice mail systems. They also do not address getting additional help.
Added to brainstorming section
Dyslexia is a hidden disability thought to affect around 10% of the population, 4% severely.
Note that recent studies indicate that dyslexia is particularly prevalent among small business owners, with roughly 20 to 35 percent of US and British entrepreneurs being affected. This is important as often people feel the dyslexics are not in their user audience. With the exception of a scrabble game site, that is very unlikely. [39]
http://www2.open.ac.uk/students/disability/dyslexia-or-other-specific-learning-difficulties.php
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3. C. Njioktien ,(1998) Nuerological Arguments for a joint developmental Dysphasia-Dyslexia syndrome
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21. Woodcock, R. W. (1987) Woodcock Reading Mastery Tests, Revised (American Guidance Service, Circle Pines, MI).
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23. Geschwind, N. (1985) in Dyslexia: A Neuroscientific Approach to Clinical Evaluation, eds. Duffy, F. H. & Geschwind, N. (Little, Brown, Boston), pp. 195–211.
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28. Dejerine, J. (1891) C. R. Societe du Biologie 43, 197–201.
29. Damasio, A. R. & Damasio, H. (1983) Neurology 33, 1573–1583.
30. Friedman, R. F., Ween, J. E. & Albert, M. L. (1993) in Clinical Neuropsychology, eds. Heilman, K. M. & Valenstein, E. (Oxford Univ. Press, New York), pp. 37–62.
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32. Tallal et all (1993) Temporal information processing in the nervous system: special reference to dyslexia and dysphasia. New York : The New York academy of science
33 Tallal et all (1998) New York : The New York academy of science
34. Hulme (1981) Reading and retardation and multisensory teaching: London :ROUTLEDGE AND KEGAN PAUL
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^ 39 Brent Bowers (2007-12-06). "Tracing Business Acumen to Dyslexia". New York Times.Cites a study by Julie Logan, professor of entrepreneurship at Cass Business School in London, among other literature.
40 b Berninger, Virginia W.; Raskind, Wendy, Richards, Todd, Abbott, Robert, Stock, Pat (5 November 2008). "A Multidisciplinary Approach to Understanding Developmental Dyslexia Within Working-Memory Architecture: Genotypes, Phenotypes, Brain, and Instruction". Developmental Neuropsychology 33 (6): 707–744. doi:10.1080/87565640802418662. PMID 19005912.
<a name="41">41</a> a b Stein, John (1 January 2001). "The magnocellular theory of developmental dyslexia". Dyslexia 7 (1): 12–33. doi:10.1002/dys.183.
43 Cao, F., Bitan, T., Chou, T.-L., Burman, D. D. and Booth, J. R. (2006), Deficient orthographic and phonological representations in children with dyslexia revealed by brain activation patterns. Journal of Child Psychology and Psychiatry, 47: 1041–1050. doi: 10.1111/j.1469-7610.2003.01684.x
44 http://www.ncbi.nlm.nih.gov/pubmed/11305228
45 Developmental Psychopathology, Risk, Disorder, and Adaptation Donald J. Cohen John Wiley & Sons, Feb 27, 2006
Write a short overview of the group to give readers a sense of context
Identify cognitive functions affected by aphasia
Aphasia is a communication disorder that impairs an individual's abilities to speak, write, read or understand speech, or a combination of these abilities. Aphasia is caused by brain damage due to stroke, injury, brain tumors or infections and can be mild to severe.
Inability to read, naming problems (finding the right word to refer to something), mis-articulated words, grammatical errors in speech, difficulty with numerical calculations, slow and effortful speech, inability to compose written language or inability to understand speech.
Aphasia can affect any aspect of language -- reading, writing, speaking or listening, or combinations of these abilities. However, difficulty in reading is probably the symptom that most impacts use of the web, because most websites do not make heavy demands on the other language-related skills. Minimal writing, such as form-filling, is common on websites, but extensive writing, such as a product review or blog comment, is usually optional. Speaking is rarely required for interacting with a conventional website. It may be used in websites that support real-time human-human communication, but then a human is present who can make an extra effort to understand someone who doesn't speak fluently. Speaking, however, is often required in telephone voice applications. Using the keypad as an alternative to voice may also be difficult for some people with aphasia. Listening is required for websites where audio or video material is presented. Closed-captioning is not necessarily an option because many people with aphasia are unable to read. Many people with aphasia have some degree of hemiplegia, associated with the brain injury that affected their language. This means that using a mouse or keyboard can be difficult, so typing is not necessarily available as an alternative. In addition to difficulty reading text, some people with aphasia find certain websites confusing, for example, if there's too much material.
Another aspect of aphasia that impacts web accessibility is that the symptoms of aphasia vary considerably from person to person, and even in the same person from day to day. For example, some people with aphasia find that reading text for 15 or 20 minutes is ok, then the "brain shuts down". However, for some people reading is unaffected. Some people with aphasia can speak fairly well, but some don't talk at all. Specific aspects of reading might be differentially affected, for example, numbers, or people's names.
Add persona and scenario
Add table of ICT Steps and challenges.
to include: Email, apps, voice systems, IM
Add table.
Task | Description |
---|---|
People with aphasia use the web to shop, get information, communicate with others, and be entertained. These tasks involve the language abilities affected by aphasia (listening, speaking, reading and writing), although to different extents. Tasks like shopping, getting information and being entertained typically heavily involve reading, with some writing required for form-filling. Communicating with others via email or social networking requires both reading and writing. People with aphasia who have difficulties with spoken language may find it hard to understand the audio tracks of videos. Speaking is very rarely required for interacting with a traditional website, so speaking difficulties are unlikely to impact web usage by people with aphasia. Telephone voice applications, on the other hand, are likely to be very difficult to use for people whose speech is affected. |
Add examples with descriptions of features
Impairments in reading ability affect many aspects of web usage. We can separate reading tasks into reading multiple paragraphs of informative text and reading captions on form items. Paragraphs of informative text can be made easier to read through general techniques that improve readability, such as simpler language, well-structured layout and organization, use of white space, and typography that enhances legibility. Form filling also requires reading, but in a different way. The purpose of reading the caption on a form is to understand what the user has to do to provide the correct information for the form. Form captions need to be simple and clear. The user should be able to hear as well as see the caption on a form as needed, even repeating the audio several times if necessary. Well-designed icons can also supplement text and audio captions. The user should also be able to hear their own input, since some people with aphasia can write but not read.
Text to speech
Add literary summary and insert guidelines and or references
Review challenges and describe where needs are met. Identify gaps
Add ideas for filling gaps
Although estimating the prevalence of aphasia is difficult, especially in the developing world, aphasia is estimated to affect about 0.4 percent of the population. "This year 130,000 people in the UK will have a stroke. One-third of those who survive will have aphasia. Surprisingly, there are currently about 250,000 people with aphasia in the UK alone." - from http://www.ukconnect.org/aphasiaquestionsandanswers_302.aspx
Add section
Communication Difficulties and Disorders may include non-vocal individuals such as those who have Aphonia, Anarthria and other disabilities that preclude any form of speech and language. The description also includes those with Aphasia who may have receptive and expressive difficulties, Dysarthria and dyspraxia where words may become unintelligible and a wide range of other difficulties that make articulation of accurate sounds difficult, language expression and understanding hard to achieve and vocalization impossible. This can include those who have hearing impairments and cognitive disabilities.
The American Association of Speech-Language-Hearing Association (ASHA) definition for communication disorders is as follows: "A communication disorder is an impairment in the ability to receive, send, process, and comprehend concepts or verbal, nonverbal and graphic symbol systems. A communication disorder may be evident in the processes of hearing, language, and/or speech. A communication disorder may range in severity from mild to profound. It may be developmental or acquired. Individuals may demonstrate one or any combination of communication disorders. A communication disorder may result in a primary disability or it may be secondary to other disabilities. - See more at: http://www.asha.org/policy/RP1993-00208/#sthash.AEt5fyvf.dpuf"
Cognitive function as "an intellectual process by which one becomes aware of, perceives, or comprehends ideas" (Mosby, 2009)may or may not be tied directly to a communication disorder. An individual may have high cognitive functioning and still be unable to communicate.
An example would be Aphasia that impairs an individual's abilities to speak, write, read or understand speech, or a combination of these abilities. Aphasia is caused by brain damage due to stroke, injury, brain tumors or infections and can be mild to severe.
Anarthria: Loss of the motor ability that enables speech. Complete loss of the ability to vocalize words as a result of an injury to the part of the brain that is responsible for controlling the larynx.
Aphasia: A disturbance of the comprehension and formulation of language caused by dysfunction in specific brain regions. There may be an inability to read, naming problems (finding the right word to refer to something), mis-articulated words, grammatical errors in speech, difficulty with numerical calculations, slow and effortful speech, inability to compose written language or inability to understand speech.
Apraxia: An acquired oral motor speech disorder affecting an individual's ability to translate conscious speech plans into motor plans.
Autism: A disorder of neural development characterized by impaired social interaction and verbal and non-vocal communication.
Aphonia: The inability to produce voice.
Alalia: A delay in the development or use of the mechanisms that produce speech.
Dyslalia: Difficulties in talking due to structural defects in speech organs.
Developmental verbal dyspraxia: Motor speech disorder involving impairments in the motor control of speech production.
Developmental Disabilties: Fragile X, Down syndrome, pervasive developmental disorders, fetal alcohol spectrum disorders, cerebral palsy.
Intellectual Impairment: traumatic brain injury, lead poisoning, Alzheimer's disease.
The following rights are summarized from the United States of America's Communication Bill of Rights put forth in 1992 by the US National Joint Committee for the Communication Needs of Persons with Severe Disabilities. (1992). Guidelines for meeting the communication needs of persons with severe disabilities. Asha, 34(Suppl. 7), 2–3. http://www.asha.org/NJC/bill_of_rights.htm
"All people with a disability of any extent or severity have a basic right to affect, through communication, the conditions of their existence. All people have the following specific communication rights in their daily interactions.
Each person has the right to
Young non-vocal communicators are very often encouraged to make vocal speech and all efforts are made to achieve that goal. There is a persistent idea that if AAC systems are introduced early in a child’s life it will delay or prevent the development of verbal speech. This conclusion is erroneous. Research (http://www.pecsusa.com/research.php) has shown that the introduction of AAC early in a child’s life will actually help the child develop verbal speech if that capability exists. The emphasis on making verbal speech still continues after AAC is introduced, but the fact that the child now has a means of communicating means that their right to communicate is already being supported. In situations where Speech and Language Pathologists (SLP) attempt to introduce AAC early the challenge to enlist the family/caregivers as supporters of AAC often fails. In situations where no SLP is available and/or the knowledge that there are relatively inexpensive interventions available and/or the parents/caregivers do not support the system, the child is not supported with an AAC system and expectations fall far short of the child's potential.
Major Challenges:
Because very special conditions must be present to support a non-vocal communicator with AAC (resources, knowledge, support) non-vocal people are often not helped to develop even low-tech communication systems. This leads to vastly reduced opportunities for the non-vocal communicator. In individuals for whom functional level prohibits using AAC tools, there are other strategies such as indirect selection, facial expression, vocalizations, gestures, and sign languages.
Since high-tech AAC systems almost always have different operating systems and file structures, each time a new device is added someone has to manually re-program the communication system. This non-interoperability problem exists across almost all devices, even extending to multiple devices developed within by a single manufacturer. This is a major challenge facing most non-vocal people using high-tech AAC systems.
Communication books, symbol sets and software to customize and print icons, activity boards, picture schedules, and other low-tech communication tools are relatively inexpensive as is training for non-vocal people, SLPs, and parents/caregivers. Inexpensive is a relative term, and many communities do not have resources for even the basic tools, but if a basic methodology is employed, then even makeshift tools will enable some communication beyond making sounds, pointing, and gesturing.
High-tech AAC systems are expensive as are extended warranties. The life of a device is usually limited to the life of the extended warranty offered by the manufacturer. This is due not only to the expense involved in supporting an out-of-warranty device but also to the fact that parts become scarce when devices are discontinued and manufacturing stops. Medicare standards (in the US?) prohibit the purchase of a new device until five years from the purchase date of the previous device so insurance companies and institutions follow that pattern. This makes the de-facto life of high-tech AAC devices five years, and this is echoed by manufacturer warranties which typically extend coverage to five years.
There are costs associated with failing to implement AAC. These costs include social and health consequences for neuro-typical as well as other communicators. AAC introduces a range of behavior modification techniques for non-neuro-typical individuals. Example: use of a picture schedule creates the opportunity for frictionless transitions in individuals for whom transitions are difficult and who may act out their fears with self-harming or other behaviors.
Aphasia can affect any aspect of language -- reading, writing, speaking or listening, or combinations of these abilities. However, difficulty in reading is probably the symptom that most impacts use of the web, because most websites do not make heavy demands on the other language-related skills. Minimal writing, such as form-filling, is common on websites, but extensive writing, such as a product review or blog comment, is usually optional. Speaking is rarely required for interacting with a conventional website. It may be used in websites that support real-time human-human communication, but then a human is present who can make an extra effort to understand someone who doesn't speak fluently. Speaking, however, is often required in telephone voice applications. Using the keypad as an alternative to voice may also be difficult for some people with aphasia. Listening is required for websites where audio or video material is presented. Closed-captioning is not necessarily an option because many people with aphasia are unable to read. Many people with aphasia have some degree of hemiplegia, associated with the brain injury that affected their language. This means that using a mouse or keyboard can be difficult, so typing is not necessarily available as an alternative. In addition to difficulty reading text, some people with aphasia find certain websites confusing, for example, if there's too much material.
Another aspect of aphasia that impacts web accessibility is that the symptoms of aphasia vary considerably from person to person, and even in the same person from day to day. For example, some people with aphasia find that reading text for 15 or 20 minutes is ok, then the "brain shuts down". However, for some people reading is unaffected. Some people with aphasia can speak fairly well, but some don't talk at all. Specific aspects of reading might be differentially affected, for example, numbers, or people's names.
S is a 21 year old woman with a chromosomal deletion known as Cri-du-chat Syndrome, or Five P Minus (5p-). She is a mosaic; she has the transcription error in approximately 50 percent of her cells, so some of the classic Cri-du-chat symptoms are not present such as congenital heart problems and microcephaly. S has orthopedic impairments, is ataxic (loss of full control of bodily movements) and hypotonic (abnormally low body tone) and she is developmentally disabled. She is also nearly completely non-vocal, but she has a communication system. S uses the Picture Exchange Communication System (PECS) (http://www.pecsusa.com/pecs.php) as her base methodology and this is invoked in whatever communication book, picture schedule, choice boards, and other low-tech systems she uses. PECS methodology is also used in her high-tech voice output devices. Using PECS as the base methodology supports her with a consistent approach that has allowed her to develop into a very confident communicator. Since she cannot read or write she relies on icons and pictures to navigate and make her communication choices. She has been using a communication book since she was five years old (and still does) and she started using high-tech AAC systems when she was ten years old. All of her high-tech AAC devices have been purchased from a single vendor, and none of them have been interoperable, requiring her communication environment to be created manually at each change of device. None of her other non-vocal classmates/peers have communication systems.
Mr C was a highly skilled accountant before he suffered a stroke, he read widely and enjoyed using technology for both his work and leisure activities. After a severe left sided brain haemorrhage he not only could not speak clearly and had difficulty understanding conversation, but he also found that he could not read or write in a recognizable way. He found it hard to concentrate and when trying to use the Internet he did not have the skills to search for things of interest let alone read the content of the web pages. He was extremely frustrated, found himself breaking down. It was extremely distressing for his family. Slowly words returned and reading skills improved but he found the clutter on the screen exasperating and often failed to select the correct link or menu item. As he progressed in his rehabilitation, he was able to read slowly and made limited use of text to speech and increased font sizing. However, he tired easily, complained of eye strain and would often give up if he could not find something he was searching for. He could not cope with CAPTCHA technology, found form filling difficult and would often buy the wrong items on Amazon by accident. However, with support and using simple technologies to de-clutter web sites, so that the text was clear without advertisements and excessive imagery Mr. C continued to take up the challenge of reading from the screen and his skills slowly improved. Eventually he was able to make use of social networks with friends who understood his difficulties and enjoyed asynchronous communication where he did not have to answer immediately and could take his time reading and composing messages.
There are many people who have spoken language communication difficulties who can cope with the use of the web and ICT at a very high level. It can provide their only method for dialogue using e-mail, instant messaging, social media etc. Individuals with cognitive disabilities as well as communication difficulties may on the other hand struggle with elements of Internet usage. They may find the intricacies of navigation, complex content and confusing messaging systems hard to access.
There remains a lack of suitable systems that are simple enough for symbol users to engage with a wide range of social networks, email and voice systems. Users generally need to use bespoke software that allows for symbol to text and text to symbol conversions. Use of the web is hampered by a lack of symbol based informational sites - simple word to symbol translation does not always solve comprehension problems.
People with aphasia use the web to shop, get information, communicate with others, and be entertained. These tasks involve the language abilities affected by aphasia (listening, speaking, reading and writing), although to different extents. Tasks like shopping, getting information and being entertained typically heavily involve reading, with some writing required for form-filling. Communicating with others via email or social networking requires both reading and writing. People with aphasia who have difficulties with spoken language may find it hard to understand the audio tracks of videos. Speaking is very rarely required for interacting with a traditional website, so speaking difficulties are unlikely to impact web usage by people with aphasia. Telephone voice applications, on the other hand, are likely to be very difficult to use for people whose speech is affected.
Add examples with descriptions of features
Impairments in reading ability affect many aspects of web usage. We can separate reading tasks into reading multiple paragraphs of informative text and reading captions on form items. Paragraphs of informative text can be made easier to read through general techniques that improve readability, such as simpler language, well-structured layout and organization, use of white space, and typography that enhances legibility. Form filling also requires reading, but in a different way. The purpose of reading the caption on a form is to understand what the user has to do to provide the correct information for the form. Form captions need to be simple and clear. The user should be able to hear as well as see the caption on a form as needed, even repeating the audio several times if necessary. Well-designed icons can also supplement text and audio captions. The user should also be able to hear their own input, since some people with aphasia can write but not read.
Below is the direct quote from Tanya A. Rose, Linda E. Worrall, Louise M. Hickson, Tammy C. Hoffmann, (2012) Guiding principles for printed education materials: Design preferences of people with aphasia. International Journal of Speech-Language Pathology 14:1, pages 11-23.
More References Kitching, J. (1990). Patient information leafl ets: The state of the art. Journal of the Royal Society of Medicine , 83 , 298 – 300. Tarleton, B.,(2008) Finding the Right Help - University of Bristol http://www.bristol.ac.uk/wtwpn/resources/finding-the-right-help-report.pdf (accessed 27th June 2014)
Specific technologies that can help those who have communication difficulties vary enormously. They range from simple text to speech that can aid reading ability, the highlighting of text as items are read aloud, enlarged font sizing and different font styles to complex communication aids.
Those who have Aphasia may find it helpful to use the reading aids mentioned above and those who cannot communicate with text may need to use symbols or pictograms or other forms of augmentative and alternative communication (AAC). There are a wide range of systems including unaided AAC systems that do not require an technologies but may include facial expression, vocalizations, gestures, and sign languages. Then there are the low-tech communication aids which may be defined as those that do not need batteries, electricity or electronics such as communication books and boards. High-tech communication systems can include speech generating devices and software for computers, tablets, and smart phones.
Specific groups of AAC users: cerebral palsy, intellectual impairment, autism, developmental verbal dyspraxia, traumatic brain injury (TBI), aphasia, locked-in syndrome, amyotrophic lateral sclerosis, Parkinson's disease, multiple sclerosis, dementia.
Types of symbol AAC methodologies:
Symbol sets:
Add literary summary and insert guidelines and or references
To do: Review challenges and describe where needs are met. Identify gaps
It entirely depends on the degree to which an individual is able to use language both written and spoken, expressive and receptive but it is clear that those who have considerable communication disorders with minimal literacy skills will have difficulty accessing web pages and coping with navigation within and between sites. To this extent there are considerable gaps that need to be bridged including:
Add ideas for filling gaps
"People with aphasia comprehended significantly more aphasia-friendly paragraphs than control paragraphs. They also comprehended significantly more paragraphs with each of the following single adaptations: simplified vocabulary and syntax, large print, and increased white space. Although people with aphasia tended to comprehend more paragraphs with pictures added than control paragraphs, this difference was not significant. No significant correlation between aphasia severity and the effect of aphasia-friendly formatting was found. " http://www.tandfonline.com/doi/abs/10.1080/02687030444000958#.U6dOVPldXxU
Research has shown that Speech Therapists are not necessarily the best judge of whether a website is good or bad in terms of clarity, layout etc for someone who has Aphasia. (Carlye Ghidella, Stephen Murray, Melanie Smart, Kryss McKenna & Linda Worrall, (2005) Aphasia websites: An examination of their quality and communicative accessibility. Aphasiology 19:12, pages 1134-1143.)
Between 6 and 8 million people in the U.S. have some form of language impairment. Research suggests that the first 6 months of life are the most crucial to a child's development of language skills. For a person to become fully competent in any language, exposure must begin as early as possible, preferably before school age. Anyone can acquire aphasia (a loss of the ability to use or understand language), but most people who have aphasia are in their middle to late years. Men and women are equally affected. It is estimated that approximately 80,000 individuals acquire aphasia each year. About 1 million persons in the U.S. currently have aphasia. Although estimating the prevalence of aphasia is difficult, especially in the developing world, aphasia is estimated to affect about 0.4 percent of the population. "This year 130,000 people in the UK will have a stroke. One-third of those who survive will have aphasia. Surprisingly, there are currently about 250,000 people with aphasia in the UK alone." - from http://www.ukconnect.org/aphasiaquestionsandanswers_302.aspx
Voice Source: Compiled by NIDCD based on scientific publications.
Approximately 7.5 million people in the United States have trouble using their voices. Spasmodic dysphonia, a voice disorder caused by involuntary movements of one or more muscles of the larynx (voice box), can affect anyone. The first signs of this disorder are found most often in individuals between 30 and 50 years of age. More women than men appear to be affected. Laryngeal papillomatosis is a rare disease consisting of tumors that grow inside the larynx, vocal folds, or the air passages leading from the nose into the lungs. It is caused by the human papilloma virus (HPV). Between 60 and 80 percent of laryngeal papillomatosis cases occur in children, usually before the age of three. Speech Source: Compiled by NIDCD based on scientific publications.
The prevalence of speech sound disorders in young children is 8 to 9 percent. By the first grade, roughly 5 percent of children have noticeable speech disorders; the majority of these speech disorders have no known cause. By the time they are six months old, infants usually babble or produce repetitive syllables such as "ba, ba, ba" or "da, da, da." Babbling soon turns into a kind of nonsense speech jargon that often has the tone and cadence of human speech, but does not contain real words. By the end of their first year, most children have mastered the ability to say a few simple words. By 18 months of age, most children can say 8 to 10 words. By age 2, most put words together in crude sentences such as "more milk." At ages 3, 4, and 5, a child's vocabulary rapidly increases, and he or she begins to master the rules of language. It is estimated that more than 3 million Americans stutter. Stuttering can affect individuals of all ages, but occurs most frequently in young children between the ages of 2 and 3. Boys are 3 times more likely than girls to stutter. Most children, however, outgrow their stuttering, and it is estimated that fewer than 1 percent of adults stutter. Language Source: Compiled by NIDCD based on scientific publications.
Brennan, A., Worrall, L., & McKenna, K. (2005). The relationship between specific features of aphasia-friendly written material and comprehension of written material for people with aphasia: An exploratory study. Aphasiology, 19(8), 693-711. doi:10.1080/02687030444000958
Herbert R., Haw, C., Brown, C., Gregory E. and Brumfitt, S. (2012). Accessible Information Guidelines. London: Stroke Association. Retrieved from http://www.stroke.org.uk
Caitlin Brandenburg, Linda Worrall, Amy D. Rodriguez & David Copland, (2013) Mobile computing technology and aphasia: An integrated review of accessibility and potential uses. Aphasiology 27:4, pages 444-461.
Tanya A. Rose, Linda E. Worrall, Louise M. Hickson & Tammy C. Hoffmann, (2011) Exploring the use of graphics in written health information for people with aphasia. Aphasiology 25:12, pages 1579-1599.
Aimee Dietz, Karen Hux, Miechelle L. McKelvey, David R. Beukelman & Kristy Weissling, (2009) Reading comprehension by people with chronic aphasia: A comparison of three levels of visuographic contextual support. Aphasiology 23:7-8, pages 1053-1064.
Tanya A. Rose, Linda E. Worrall, Louise M. Hickson, Tammy C. Hoffmann, (2012) Guiding principles for printed education materials: Design preferences of people with aphasia. International Journal of Speech-Language Pathology 14:1, pages 11-23.
Rose, T. A., Worrall, L. E., Hickson, L. M., & Hoffmann, T. C. (2012). Guiding principles for printed education materials: Design preferences of people with aphasia. International Journal of Speech-Language Pathology, 14(1), 11-23. doi:10.3109/17549507.2011.631583
The Aging and Dementia Gap Analysis focuses on issues and techniques for improving inclusion and quality of life for people with dementia using ICT. Our strategy includes a key ambition to develop ICT techniques that will work better for people affected by dementia - and to define, develop and improve dementia and aging friendly ICT.
Many people are able to age in good health and remain active participants in society throughout their lives. But others experience physical and cognitive limitations, and may lose the ability to live independently. Although dementia mainly affects older people it is not a normal part of aging.
The most elder-rich period of human history is upon us. How we regard and make use of this windfall of elders will define the world in which we live.
A good phrase to remember regarding people with dementia; “If you’ve met one person with dementia, you’ve met one person with dementia” – largely attributed to the late Tom Kitwood although no direct source has been found..
Need AGING definition here...... From Miriam Webster's Dictionary, the definition of aging is: Gradual change in an organism that leads to increased risk of weakness, disease, and death. It takes place in a cell, an organ, or the total organism over the entire adult life span of any living thing. There is a decline in biological functions and in ability to adapt to metabolic stress. Changes in organs include the replacement of functional cardiovascular cells with fibrous tissue. Overall effects of aging include reduced immunity, loss of muscle strength, decline in memory and other aspects of cognition, and loss of hair colour and elasticity in the skin. In women, the process accelerates after menopause.
Aging definition: an age-dependent or age-progressive decline in intrinsic physiological function, leading to an increase in age-specific mortality rate (i.e., a decrease in survival rate) and a decrease in age-specific reproductive rate (7) To sum it up, aging is a complex process composed of several features: 1) an exponential increase in mortality with age; 2) physiological changes that typically lead to a functional decline with age; 3) increased susceptibility to certain diseases with age. So, I define aging as a progressive deterioration of physiological function, an intrinsic age-related process of loss of viability and increase in vulnerability. (8)
Dementia is defined as a severe loss of cognitive abilities that disrupts daily life. Symptoms include memory loss, mood changes, visual perception, focus challenges, and problems with communicating, decision making, and reasoning. Dementia is not a normal part of growing old. It is caused by diseases of the brain, the most common being Alzheimer's. Dementia is progressive, which means the symptoms will gradually get worse.
Alzheimer’s disease (62% of those with dementia): A physical disease caused by changes in the structure of the brain and a shortage of important chemicals that help with the transmission of messages. In short, Alzheimer's is a brain disease that causes a slow decline in memory, thinking and reasoning skills.
Statistics are from 2013 UK Study. Need to map with WHO and others.
Set of non-Alzheimer's Dementia diseases:
Statistics are from 2013 UK Study. Need to map with WHO and others.
This section is a technical reference. Jump to the next section on Symptoms for more practical information.
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
Overview: The parts of the brain and cognitive functions affected depend upon the type of dementia.
Alzheimer’s: Specific Causes are being researched, but scientists note a buildup of two abnormal proteins (amyloid and tau) which damage nerve cells in the brain. The proteins form different types of clumps, plaques or tangles, which interfere with how brain cells work and communicate with each other. Plaques are usually first seen in the area of the brain that makes new memories (the hippocampus of the medial temporal lobe), but then moves to other parts of the brain as the disease progresses.
Whenever the temporal part of the brain becomes diseased, people with dementia have difficulty making sense of sounds. They may lose the ability to follow conversations or become abnormally sensitive to sound. People can also become uncertain about the location of sounds, and social situations and music may be more difficult to enjoy.
In Posterior Cortical Atrophy, a rare form of Alzheimer’s, the parietal and occipital lobes of the brain are affected by the same abnormal proteins found in Alzheimer’s causing difficulty in seeing where and what things are.
In frontotemporal dementia, the temporal lobe is affected causing difficulty with speech and language.
People with Alzheimer’s disease have a buildup of abnormal proteins in the Hippocampus which causes it to malfunction, affecting the ability to recognize places and they may become disoriented.
In Alzheimer’s disease, the buildup of abnormal proteins in the Hippocampus affects the ability to store new memories.
When the temporal lobe is affected by fronto-temporal dementia, it causes difficulty in recollection of factual information.
Fronto-temporal dementia is thought to be caused by proteins building up in the frontal lobe of the brain and patients often experience changes in personality and behave inappropriately.
In corticobasal degeneration, the cortex and basal ganglia become damaged, which is currently thought to occur due to the overproduction of the tau protein. This causes problems movement to be stiff or jerky and affects one or more limbs.
Dementia with Lewy bodies affects the cerebrum where small round lumps of proteins build up and can cause fluctuations of consciousness as well as hallucinations, delusions (firmly held beliefs in things that are not real) and false ideas (such as paranoia).
Overview: The parts of the brain affected and the specific symptoms depend upon the type of dementia.
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
Scenario A is an elderly person who has limited familiarity with computer devices (desktop, tablets, mobile). A would like to send an email to a family member. A needs to be able to find the mail program easily, interact with the user interface to compose and send an email, know that it has been sent, and, then know if the email has been replied to. A starts by turning on the computer.
Step |
Challenges |
Turn on computer |
Identify and press the power button to turn the computer on. This may be difficult for a number of reasons; firstly the user may find it hard to identify the power button as they may have forgotten what it looks like. Secondly some power buttons can be quite small which may be difficult for elderly people to press, especially those who have arthritis or a tremor in their hands. |
Launch email application |
This requires the user to be able to identify the correct icon for their email application. Although there is a certain amount of intuitiveness surrounding the design of icons, sometimes for the elderly this can still be a problem. In this case typing in the name of the email application (if that can be remembered) into the search bar on the start-up menu may help. |
Select button to compose new email |
The majority of buttons with an email application are labelled and therefore the user must simply read the icon labels until they find the correct one for ‘new email’ |
Type in address of recipient |
If the user is able to remember the email address of the recipient they can then type the address in the box labelled To. If the user must access their address book to find the email address they must select the address book (or contacts list) icon and then type in the name of the person they wish to email and their address should then come up. All of the above requires recognition and retrieval of information from the long term memory which could be a problem for those with memory problems. |
Type in email subject |
Type a title for your email into the subject box. This field is not mandatory and therefore if the user is unable to enter any text in this field it will not affect the actual sending of the email. However most applications will show a warning message such as ‘do you wish to send this email without a subject’ however it will still enable you to press send successfully. |
Type content of email |
This should be fairly simple provided the user can remember what they wished to say in their email. |
Send email |
The majority of email applications will have a clearly labelled button for sending the email. |
Return to inbox |
This step happens automatically after an email has been sent in the majority of email applications. |
Minimize email application to background |
By selecting the third button from the left in the top right hand corner of the email application the user is able to minimize their emails, however if the user cannot remember what the minimize button looks like or where it is located, this could be a problem for them. |
Open email application from time to time to check if reply has been received |
The challenges associated with this step will be the same as the challenges associated with step 2. |
Scenario B is a gentleman in his early 50s who has recently been diagnosed with frontotemporal dementia (early onset). He is trying to buy a train ticket online for a return journey the following day. At any point during this process the user may forget what they are doing which could result in either no ticket being purchased, or alternatively they may buy the wrong ticket, for example they may wish to travel tomorrow but purchase a ticket for the following week.
Step |
Challenges |
Turn on computer |
Identify and press the power button to turn the computer on. This may be difficult for a number of reasons; firstly the user may find it hard to identify the power button as they may have forgotten what it looks like, to extend this further the user may have entirely forgotten what the computer is for or where to find it. In this instance the task becomes impossible until their memory returns. Secondly some power buttons can be quite small which may be difficult for those with reduced dexterity, particularly for those who are older and may have arthritis or a tremor. |
Open internet browser |
Navigate home screen with mouse and identify web browser icon and select to open. Typical memory problems |
Type in URL for train ticket booking website |
Typing in the first few letters of the web address in the search bar should |
Select icon for booking train tickets |
If the icon is not labelled this could be difficult if the user forgot what the icon to buy tickets looked like, however most icons for booking train tickets are clearly labelled, therefore the only issue for the user should be recognizing the correct label and remembering what they are doing. |
Tick box for ‘return’ |
The user needs to remember that they need to purchase a return ticket in order to get home. |
Type in from and to destinations |
Given that the user is starting from their home address it can be hoped that their nearest train station is securely stored in their long term memory and can be remembered. With regards to the destination they are going to the user is likely to have written this down when arranging the outing which should help them remember the destination. |
Select date and time for outbound & return journeys |
Choosing appropriate times for travel may be difficult for people with dementia however most train ticket booking websites do not allow you to book a return journey prior to your outbound journey so at least this potential problem is guarded against. |
Select number of adult & child passengers |
In this instance only 1 person is travelling however when more than 1 person is travelling there is a higher possibility of the wrong number of tickets being purchased. |
Tick box for railcards Select railcard type and number that apply for this journey |
The user is likely to have a senior or disabled person rail card and therefore must remember to apply their railcard discount to the journey in order to get a discount. |
Select continue |
- |
Tick box for outward & return journeys (details to look at: time, price, class & single/return) |
This step involves selecting which type of ticket you wish to purchase, although all the options are laid out in a table sometimes it can be difficult to work out exactly which ticket you wish to buy and how much it costs. |
Select ‘buy now’ |
- |
Tick box to reserve seat and if so select seating preferences - optional |
This is optional and therefore if the user does not understand it is perfectly fine for them to ignore this step. |
Tick box to either; collect tickets from self-service ticket machine and select station or, have tickets sent by post |
Self-service ticket machines tend to be fairly complicated therefore as long as there is enough time (7 days prior to start of journey) it is advisable to have the tickets sent by post. |
Select ‘continue’ |
- |
Tick box new user |
If the user has not used this particular ticket booking site before they must enter all of their personal details, otherwise they just need to remember their email address and password. |
Type in personal details (Name, Address, Email, etc.) |
Personal details need to be remembered. |
Tick box payment card type (Visa, MasterCard, etc.) |
On the payment card there is a symbol to indicate which type of card it is, this information must be entered by way of ticking the correct box. |
Enter card details (number, expiry date, name, security code) |
These are written on the payment card so there is no issue with memory impairment here, however as with each step throughout this process- if the user forgets what they are trying to achieve at any point they are unlikely to be successful in this task. |
Type in post code and tick box find billing address |
|
Tick box to agree to terms and conditions and select ‘buy now’ |
|
Enter payment card secure bank password |
|
Order complete |
Scenario C is a woman with dementia in her early 70s. She finds it easier to do her supermarket shopping online as she often gets confused in the shop and forgets what she wants to buy.
Step |
Challenges |
Turn on computer |
Identify and press the power button to turn the computer on. This may be difficult for a number of reasons; firstly the user may find it hard to identify the power button as they may have forgotten what it looks like. Secondly some power buttons can be quite small which may be difficult for elderly people to press, especially those who have arthritis or a tremor in their hands. |
Open internet browser |
Navigate home screen with mouse and identify web browser icon and select to open. Typical memory problems |
Type in URL for supermarket shopping website |
Typing in the first few letters of the web address in the search bar should populate with previous history; however if its the first time a person may not understand how the automatic population of text works. |
Select ‘food and drink’ and then ‘buy groceries’ |
Finding products and selecting a quantity may pose difficulty depending on the user interface. |
Log in with username and password |
It may be difficult to remember the username and password associated for this online store. |
Delete old payment card |
|
Select ‘add payment card’ |
|
Type in the card details |
These are written on the payment card so there is no issue with memory impairment here, however as with each step throughout this process- if the user forgets what they are trying to achieve at any point they are unlikely to be successful in this task. |
Tick box ‘make this my preferred payment card’ |
|
Select ‘save’ and then either continue shopping or log out |
Assumption: User has the screen in front of them and it is already turned on.
Scenario A is an elderly person who has limited familiarity with computer devices (desktop, tablets, mobile). A would like to send an email to a family member. A needs to be able to find the mail program easily, interact with the user interface to compose and send an email, know that it has been sent, and, then know if the email has been replied to. A turns on the computer.
Step | Challenge | Solutions | Comments |
---|---|---|---|
1. Find the mail program | Search to find. What's the name/icon for the mail program? | ||
2. Activate/open the program | Remember how to start up | ||
3. Navigate the UI | Familiarize/remind themselves how to use it, understand icons/text labels, understand how to increase the font size |
||
4. Locate email editor | Remember/find correct name for composing (compose, new) | ||
5. Familiarize with the fields | Remember what each is used for/find the ones that are really needed vs. optional | ||
3. Insert Email addresses | How do I do that, what is an email address and what is its format, trouble remembering the name or email address for the person to send note to, confusion with prepopulating and word prediction, interaction with the Contacts feature, understand or ignore CC and BCC fields (solution: keep out), how to fix a wrongly entered email address |
||
7. Subject Line | Know that one is needed | maybe pre-populate | |
8. Write the Email | Not know/understanding email conventions, confusion with spellchecking, not understanding editor features (bold, italic, color), adding an image/file challenges, how to edit what has been written or how to start over, confusion if time-out occurs |
spellcheck - maybe turn off by default | |
9. Send the email | Knowing when you are done (after it goes, where does it go, do you wait for the recipient to respond immediately - is it like a phone call?) | ||
10. Closing the Program | Remember how to do that, remembering that you need to do that | ||
11. Getting a Reply | How do you know that you have one? | May be out of scope for this use case |
Assumptions: User knows they can do this from a remote device, they have the screen in front of them, it is already turned on.
Scenario B is an elderly person with early dementia. Their daughter has shown them how to use a web-enabled mobile application to change the temperature of the house. Winter has arrived and they would like to turn the heat up to keep the house warm enough. B needs help recalling how to access the temperature program, the work flow to change the temperature, and understand the elements of the user interface.
Step | Challenge | Solutions | Comments |
---|---|---|---|
1. Find the thermostat program (i.e. Nest) | Search to find that control, remember what the control is called, remember where it is | ||
2. Activate/open the program | Remember how to start up | ||
3. Navigate the UI | Familiarize/remind themselves with it, understand icons/text names, Understand how to increase font size | ||
4. Locate Temperature Control Feature | Remember/find correct name for changing (many UI versions, might be slider, button, how do I use that - maybe unfamiliar non-intuitive for them), understand icons/text labels | ||
5. Manipulate the control up or down | How to control the level of the Heat (is there a 2nd control?), is that in degrees F or C?, how to use/understand a slider feature | ||
3. Setting the desired temperature | How do I do that?, Understanding that a change has been set, does it save it automatically or do I have to do something to save it?, confusion if time-out occurs |
||
7. Closing the Program | Remember how to do that, remembering that you need to do that |
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
To do: Add table.
To do: Add examples with descriptions of features that could optimize content for users
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
Content for people with dementia and the elderly with cognitive decline then to have:
(Conclusions form The 14th international conference ICCHP 2014 - See below)
Key features from Phiriyapkanon:
They also quote minimize errors, provide onscreen help and high recover-ability Phiriyapkanon t. Is big button interface enough for elderly users, P34, Malardardalen University Press Sweden 2011
K Dobsz et. al. recommends:
Computers helping people with special needed, 14 international conference ICCHP 2014 Eds. Miesenberger, Fels, Archambault, Et. Al. Springer (pages 401). Paper: Tablets in the rehabilitation of memory impairment, K Dobsz et al.
Key features from other guidelines:
but balance this because too many steps can give a feeling of getting lost.
Computers helping people with special needed, 14 international conference ICCHP 2014 Eds. Miesenberger, Fels, Archambault, Et. Al. Springer (pages 401). Paper: Never Too old to use a tablets, L. Muskens et al. pages 392 - 393
Key features for using tablets for the elderly from Dahn et.al:
Computers helping people with special needed, 14 international conference ICCHP 2014 Eds. Miesenberger, Fels, Archambault, Et. Al. Springer ( part 2 page 329). Paper: Supporting seniorr citizens in using tablet computors tablets,Dahn et.al
To do: Add section
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
To do: Add literary summary and insert guidelines and or references
[#LANG]
Review challenges and describe where needs are met. Identify gaps
Overview: This section maps higher-level challenges to existing WCAG 2 Techniques so that we can see where there are clear gaps that will need to provide techniques for.
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
Add ideas for filling gaps
These resources are relevant to this section and for our next draft components of these articles will be incorporated into this section where applicable:
Worldwide
By Gender
Less Common Dementia (Non-Alzheimer's
(1) (http://alzheimers.org.uk/site/scripts/documents_info.php?documentID=159) (2) Alzheimer’s Society International (3) Alzheimer’s disease International (2010). ‘World Alzheimer Report 2010.’ London: Alzheimer’s disease International. (4) Alzheimer’s Society - ‘Short changed: Protecting people with dementia from financial abuse’ Alzheimer’s Society undertook the largest ever survey carried out on this subject, and analysed responses from 104 carers and 47 people with dementia as well as focus groups and interviews with professionals . (5) EuroCoDe, 2006-2008 (6) http://www.ncbi.nlm.nih.gov/pubmed/19811879 (7) Fabian, D. & Flatt, T. (2011) The Evolution of Aging. (8) www.senescence.info - Joao Pedro de Maglahaes (9) http://www.who.int/mediacentre/factsheets/fs362/en/
Abstract. A literature review of papers that have explored digital technology user interface design for people with dementia is reported. Only papers that have employed target user input directly or from other works have been included. Twenty four were analysed. Improvements in reporting of studies are recommended. A case is made for considering the population of people with dementia as so heterogeneous that one design does not suit all, this is illustrated through some case study reports from people with dementia. Furthermore it is proposed that by grouping people into functionally similar sub-groups interfaces may be designed for these groups that will collectively establish a sequence of ‘stepping stone ‘ interfaces that better address appropriate functioning and maintain self-efficacy. Fundamentally people living with dementia are unique individuals with unique specific needs. A priori, in life experiences, interests, willingness to learn, environmental factors and co-morbidities they are as varied as any of their age peers. One thing they do not share with those peers is the degenerative consequences of the specific dementia they have. The progression of their disease also follows a unique timeline – even if the general symptoms (and thus perhaps functional ability) change in a fairly predictable order. In the face of these statements it might be inferred that it is most likely that people with dementia require individual but adaptive (to progression of the disease) bespoke solutions for sustained independent living.
Given the breadth of individuality in people, the effects of dementias and indeed their progression it is impossible to view them as a single homogeneous population in terms of specifying a single user interface. In consequence rather than simply designing for all people living with dementia it is suggested that design for populations at stages of functional ability be investigated. Methods that set out to identify shared and bespoke requirements are needed to systematically establish any generalizability. Currently studies on design of digital AT and indeed other ICT for people living with dementia need to report much more detail on: describing their participants; details of user interface features that worked well; how much and what form carers help took. More attention also needs to compare strategies and features that work to identify those that are best or at least best for specific functional ability or tasks.
Abstract. The design of user interfaces for people with dementia does not appear from the literature to take into account the concomitant language and communication deficits when choosing the language used in the interfaces. A systematic approach was used to search databases for studies relating to language and communication in the four most common forms of dementia (Alzheimer’s disease, vascular dementia, fronto-temporal dementia and dementia with Lewy bodies). Studies identified were used as a basis for the commentary in this paper. Communication deficits are common in dementia. From the earliest stages of the disease, the person with dementia’s capacity for communication declines as difficulties emerge with all aspects of language and functional communication. These deficits have implications for the successful interaction with assistive digital technology designed to improve the quality of life of people with dementia. More consideration should be given at the design stages to the potential impact of communication difficulties on interaction with technology
it is important to note that the authors have not been able to find to date any conclusions about what impact these impairments may have on user interface design.
The results of this review have highlighted areas of strength (reading) and areas of difficulty (spoken language output and understanding some aspects of spoken and written language) in the communication abilities of people living with dementia. Those who design interfaces for this client group should consider the impact that their language and communication choices might have on end-users with dementia. In particular, the following general guidelines should be taken into account, in order to maximise the accessibility of the language of interfaces for people with dementia:
Down syndrome also known as Trisomy 21, is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21. It is typically associated with physical growth delays, characteristic facial features and mild to moderate intellectual disability.
Education and proper care has been shown to improve quality of life. Some children with Down syndrome are educated in typical school classes while others require more specialized education. Some individuals with Down syndrome graduate from high school and a few attend post-secondary education.
Down syndrome is best known for its affect on the development of literacy and language related skills. Down syndrome is widely recognized as being a specific learning disability of neurological origin that does not imply low intelligence or poor educational potential, and which is independent of race and social background.
This section is a technical reference. Jump to the next section on Symptoms for more practical information.
Improvements in medical interventions for people with Down's syndrome have led to a substantial increase in their longevity. Diagnosis and treatment of neurological complications are important in maintaining optimal cognitive functioning.
The cognitive phenotype in Down's syndrome is characterized by impairments in morphosyntax, verbal short-term memory, and explicit long-term memory. However, visuospatial short-term memory, associative learning, and implicit long-term memory functions are preserved. Seizures are associated with cognitive decline and seem to cause additional decline in cognitive functioning, particularly in people with Down's syndrome and comorbid disorders such as autism. Vision and hearing disorders as well as hypothyroidism can negatively impact cognitive functioning in people with Down's syndrome.
Dementia that resembles Alzheimer's disease is common in adults with Down's syndrome. Early-onset dementia in adults with Down's syndrome does not seem to be associated with atherosclerotic complications.
Source: The Lancet
People with Down syndrome often struggle with short-term auditory memory. Most people use memory to process, hold, understand and assimilate spoken language. Auditory memory relates directly to the speed with which we can articulate words, and influences the speed at which people learn new words and learn to read.
Theories about memory suggest that words we hear are received and stored in our working memory in order to make sense of them. They are then transferred to a more long-term store. However, words are only retained in the working memory for two seconds unless consciously kept there by silently repeating them to oneself, called rehearsing. The amount of information we can retain within the two-second span is called the auditory digit span.
Is there a relationship between Down’s syndrome and working memory?
Yes, many people with Down’s syndrome have difficulties in this area. Generally, long-term memory is not impaired; neither is the visual memory, which is often far stronger.
Source: Sandy Alton
The cognitive profile observed in Down syndrome is typically uneven with stronger visual than verbal skills, receptive vocabulary stronger than expressive language and grammatical skills, and often strengths in reading abilities. There is considerable variation across the population of people with Down syndrome.
Many studies have included typically developing children matched for chronological age, for non-verbal mental age or on a measure of language or reading ability. Individuals with Down syndrome have also been compared to individuals with learning difficulties of an unknown origin and to individuals who have learning difficulties of a different aetiology (e.g., specific language impairment).
The particular measures of language, reading or non-verbal ability used for matching can affect the conclusion drawn. There are also behavioral aspects of the Down syndrome phenotype other than non-verbal ability and language ability (such as motivational style) that may affect their performance on tasks, including attainment tests, and need to be taken into account.
In terms of education, there is strong evidence to suggest that the relatively recent policy of educating children with Down syndrome in mainstream schools has had a positive effect on language skills and academic attainments. This means that the findings of studies conducted a number of years ago need to be interpreted with caution.
Source: Margaret Snowling, Hannah Nash and Lisa Henderson
Intellectual and cognitive impairment and problems with thinking and learning and usually ranges from mild to moderate. Common symptoms are:
Down syndrome symptoms vary with each person and appear at different times in their lives.
Source: NIH
Down syndrome do not tend to automatise skills very well, and a high degree of mental effort is required to carrying out tasks that other individuals generally do not feel requires effort. This is particularly true when the skill is composed of several subskills (e.g. reading and writing).
It must be emphasized that individuals vary greatly in their Specific Learning Difficulties profile. Key variables are the severity of the difficulties and the ability of the individual to identify and understand their difficulties and successfully develop and implement coping strategies.
By adulthood, many people with Specific Learning Difficulties are able to compensate through technology, reliance on others and an array of self-help mechanisms - the operation of which require sustained effort and energy. Unfortunately, these strategies are prone to break down under stressful conditions which impinge on areas of weakness.
People are particularly susceptible to stress (compared with the ordinary population) with the result that increase their impairments.
Scenario A is a high school student with Down syndrome.
Although she can read at a 3rd grade level it is slow and she finds it difficult. Books geared towards a younger audience with a lot of pictures help. Plus she can comprehend and remember stories read by others. Test taking is very stressful and it helps when the teacher can help her take the test orally. She is strong on the computer especially when interested in the topics. She can surf the internet and do research but needs to be reminded to stay on task and not get distracted by other sites and advertisements. She does not use assistive technology but has in the past to improve her reading skills. The teacher aide has to remind her to stay on task during exercise. She can do simple research projects but only if supported with reminders and visual ques.
Step | Challenge |
---|---|
Search query | |
Scanning results | |
Doing a short review of different option and finding the most appropriate | |
Finding the right content in the right document | |
Read the right content | |
Collecting the information | |
Coping for Citing the resources and collecting them with the right information | |
Remembering the process (re-finding it next time) | |
Saving the work | |
Putting it together and writing the paper | Her writing is poor and so this would be Out of scope of this user case |
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Aim to ensure that written material takes into account the visual stress experienced by some Down syndrome people, and to facilitate ease of reading. Adopting best practice for Down syndrome readers has the advantage of making documents easier on the eye for everyone. Font. (Remember people with Down syndrome can be easily distracted and confused)
Note: Checking Readability. To set your spell checker in Word 2003 to automatically check readability, go to Tools, Options, Spelling, and Grammar, then tick the Readability request. Word will then show your readability score every time you spell check. In Word 2007 Click the Microsoft Office Button, and then click Word Options. Click Proofing. Make sure Check grammar with spelling is selected. Under When correcting grammar in Word, select the Show readability statistics check box. Check long documents in sections, so that you know which parts are too hard.
References:
Review challenges and describe where needs are met. Identify gaps
Add ideas for filling gaps
The estimated incidence of Down syndrome is between 1 in 1,000 to 1 in 1,100 live births worldwide. Each year approximately 3,000 to 5,000 children are born with this chromosome disorder and it is believed there are about 250,000 families in the United States of America who are affected by Down syndrome.
Sixty to 80 percent of children with Down syndrome have hearing deficits. Forty to 45 percent of children with Down syndrome have congenital heart disease. Intestinal abnormalities also occur at a higher frequency in children with Down syndrome.
Children with Down syndrome often have more eye problems than other children who do not have this chromosome disorder. Another concern relates to nutritional aspects. Some children with Down syndrome, in particular those with severe heart disease often fail to thrive in infancy. On the other hand, obesity is often noted during adolescence and early adulthood. These conditions can be prevented by providing appropriate nutritional counseling and anticipatory dietary guidance.
Thyroid dysfunctions are more common in children with Down syndrome than in other children. Skeletal problems have also been noted at a higher frequency in children with Down syndrome. Other important medical aspects in Down syndrome, including immunologic concerns, leukemia, Alzheimer disease, seizure disorders, sleep apnoea and skin disorders, may require the attention of specialists in their respective fields.
Source: World Health Organization - http://www.who.int/genomics/public/geneticdiseases/en/index1.html
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Attention deficit hyperactivity disorder is generally characterized by some combination of hyperactivity, impulsivity, and/or inattention. Three major types of ADHD are currently described. These symptoms are present in the affected child to such a degree that they significantly interfere in at least two areas of the child's life, such as in the home and classroom. (1)
Difficulty in remaining seated Difficulty awaiting turn or standing in line. Runs about or climbs excessively when it is inappropriate. Talks excessively: blurts out answers before questions have been completed. Tendency to interrupt: interrupts or intrudes on others, such as butting into conversations or games. Difficulty engaging in quiet activities.
symptoms of inattention, impulsiveness, irritability, intolerance, and frustration. often forgetful of daily duties, instructions, orders, and recommendations. Difficulties in recalling general information, even with intense effort.
Add persona and scenario
Add table of ICT Steps and challenges.
apps such as Timers and To-Do Lists to remind them of activities Email to send items to themselves as reminders for follow-up VM - Same as email, send a voice mail as a reminder.
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Add descriptions of key features and how it helps users overcome challenges
Many resources/experts suggest using a smartphone with a calendar and to-do list. These can also be used as timers and alarms for limiting time on tasks (work, homework, TV, internet, reading) and can also be used as an alarm system to time leaving for school or work - not just for getting out of bed.
The editors of HealthLine curated a list of the 16 best ADHD apps at http://www.healthline.com/health-slideshow/top-adhd-android-iphone-apps#1
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Percent of Youth Aged 4-17 with Current Attention-Deficit/Hyperactivity Disorder by State: National Survey of Children's Health - US 8.8 (3)
LD/ADHD stuff: http://www.catea.gatech.edu/scitrain/science/modules/adhd/introduction.php http://www.catea.gatech.edu/scitrain/science/modules/ld/module8_1.php
References:
"Autism spectrum disorder (ASD) is a developmental disability that can cause significant social, communication and behavioral challenges. There is often nothing about how people with ASD look that sets them apart from other people, but people with ASD may communicate, interact, behave, and learn in ways that are different from most other people. The learning, thinking, and problem-solving abilities of people with ASD can range from gifted to severely challenged. Some people with ASD need a lot of help in their daily lives; others need less.
A diagnosis of ASD now includes several conditions that used to be diagnosed separately: autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), and Asperger syndrome. These conditions are now all called autism spectrum disorder." (See 2.)
"People with ASD often have problems with social, emotional, and communication skills. They might repeat certain behaviors and might not want change in their daily activities. Many people with ASD also have different ways of learning, paying attention, or reacting to things. Signs of ASD begin during early childhood and typically last throughout a person’s life.
Children or adults with ASD might:
Different list of symptoms:
"Trevor is a bright 18-year-old who plays games and watches music videos on his laptop. He lives at home with his parents and younger sister. He attends a special school where the teachers and staff can help with his social and communication challenges from his Autism Spectrum Disorder, while he works to pass his high school exams.
He has problems with visual information and recognizing things on the page, and his reading skills are not helped by his trouble concentrating on the page or screen long enough to read. His teachers showed him how to make the text bigger on the page, and told him how to use a printable view to hide all the ads with moving images that distract him, because he reads every word on the page very carefully and literally. He can be easily confused by colloquialisms and metaphors. He can also be overwhelmed by sites that offer too many choices.
He likes using the school’s forum to talk to his friends. It’s easier to just read what they want to say than to listen and try to figure out their facial expressions.
He shares a laptop with the family, but has first dibs on it because his parents want him to get his schoolwork done. He uses it for homework, but he really likes games with repetitive actions. He doesn’t like new sites much, in the same way that he doesn’t like any changes in his routine: they are tolerated, but not encouraged." (See 8, 9.)
Step | Challenge | Solutions | Comments |
---|---|---|---|
1. Activate / open the web browser. | Remember how to start the web browser. | ||
2. Open the website. | Recall the web address and know how to invoke it with the web browser. | Enter the web address. | |
3. Navigate the website. | Familiarize / recall how to use it; and understand icons/text labels and navigation menus. | ||
4. View a webpage. | Comprehend the content without being distracted by advertisements, extraneous content, etc.. | Increase font size and/or activate the print view of the web browser. | The solutions may be mutually exclusive. |
Middle-aged female with PDD-NOS (Pervasive Development Disorder-Not Otherwise Specified). She experiences significant social deficits and meets all the diagnostic criteria for autistic disorder, but her stereotypical and repetitive behaviors are noticeably mild. She finds it easier to send an email message than communicate via speech with people as it eliminates any social anxiety she may experience when interacting with people in person.
Step | Challenge | Solutions | Comments |
---|---|---|---|
1. Turn on computer. | |||
2. Launch email application. | The first issue here arises from the glaring white background that is often used in email applications along with poorly-contrasted small fonts. Although there are options for changing some of the design settings, these are often hard to find and difficult to navigate. | ||
3. Select button to compose new email message. | Users with autism have a tendency to take a literal understanding of what people say and write. Therefore, the users may not understand any connotations, and are also prone to perhaps lack emotion in their own writing. There is a potential issue here as what users write may come across as unnecessarily blunt even though this is unintended. Similarly, users may misinterpret what is written to them by not understanding the connotations. When reading emails, users with ASD will often break down lengthy emails into more manageable chunks and edit the style/size/color of font. | ||
4. Type in address of recipient. | Facilitate comprehension and minimize distractions. | Increase font size and/or activate the print view of the web browser. | |
5. Send email message. |
Older male with Asperger’s who does not have any cognitive impairment. However, he exhibits repetitive behavior and has significant trouble with social situations, specifically communicating with others. He prefers to buy his train tickets online as it eliminates any social interaction which he is not keen on. He struggles to communicate with others successfully. He has extreme anxiety. He has been either unable to purchase a ticket in person, or ended up with the wrong ticket through his lack of ability to express what he needs specifically to the ticket-office attendant. When buying train tickets, there is noticeable task avoidance amongst many people on the spectrum.
Step | Challenge | Solutions | Comments |
---|---|---|---|
1. Turn on computer. | |||
2. Open web browser. | |||
3. Type in web address for train ticket booking website. | |||
4. Select icon for booking train tickets. | |||
5. Tick box for ‘return’. | |||
3. Type in departure and arrival locations. | |||
7. Select date and time for outbound and return journeys. | |||
8. Select number of adult and child passengers. | |||
9. Tick box for railcards. | |||
10. Select railcard type and number that apply for this journey. | |||
11. Select continue. | |||
12. Tick box to select specific outward & return journeys (details to look at: time, price, class and single/return). | May have a poor concept of time, meaning it is difficult to calculate if a train will arrive in time, especially where the journey involves changing trains. | ||
13. Select ‘buy now’. | |||
14. Tick box to reserve seat and if so select seating preferences- optional. | |||
15. Tick box to either: collect tickets from self-service ticket machine and select station; or have tickets sent by post. | |||
13. Select ‘continue’. | |||
17. Tick box 'new user'. | |||
18. Type in personal details (Name, Address, Email, etc.). | |||
19. Tick box payment card type (Visa, MasterCard, etc.). | |||
20. Enter card details (number, expiry date, name, security code). | |||
21. Type in home address. | |||
22. Tick box to agree to terms and conditions and select ‘buy now’. | |||
23. Enter payment-card secure-bank password. | |||
24. Click 'Submit' button. |
Young adult male with ‘classic’ Autism. He has a severe cognitive delay and is non-verbal, a side effect of which is extreme social inhibition. He is able to communicate via pictures when necessary with his family and carers. A local supermarket is a good example of a place where he can easily become overwhelmed, which severely affects his ability to communicate effectively. However, in the comfort of his own home he is much better able to function, and therefore is less dependent upon others for help. The task of online shopping is made much easier if a very- specific item is required and there is little choice.
Step | Challenge | Solutions | Comments |
---|---|---|---|
1. Turn on computer. | |||
2. Open web browser. | |||
3. Type in web address for online supermarket website. | |||
4. Select ‘food and drink’ and then ‘buy groceries’. | Entering a search item may produce many results. This can be confusing if they are all similar, as it can be difficult to choose which one is best. | Increase font size and/or activate the print view of the web browser. | |
5. Select groceries to purchase. | Most items available for purchase will have an image alongside their descriptive text. This should help when choosing the correct items. However, there is a level of inconsistency across different online supermarket shops regarding the images they use to denote each their products. This can be very confusing. | ||
3. Select ‘buy now’. | |||
7. Log in with username and password. | |||
8. Select delivery date and time. | |||
9. Type in delivery-address details. | |||
10. Select payment method. | |||
11. Type in payment-card details. | |||
12. Select ‘order’. |
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Add literary summary.
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Notes for further research:
The United States Centers for Disease Control and Prevention estimate 1 in 68 children has been identified with autism spectrum disorder. The data show autism spectrum disorders are almost five times more common in boys than girls; and more common in white children than African-American or Hispanic children. (See 3.) Studies in Asia, Europe, and North America have identified individuals with ASD with an average prevalence of about 1%. (See 1.) A study in South Korea reported a prevalence of 2.6%. (See 4.)
Dyscalculia is a specific learning disability relating to mathematics. People with dyscalculia have significant problems with numbers and mathematical concepts - but still have a normal or above normal IQ. Few dyscalculics have problems with maths alone, many also struggle with problems being able to learn to tell time, left/right orientation, rules in games and much more.
Researchers have yet to come to a final conclusion with just how many types of dyscalculia exist. David Geary has broken the disability down into 4 main areas (1): - Semantic retrieval dyscalculia - Procedural dyscalculia - Visuospatial dyscalculia - Number fact dyscalculia
It should be noted that this is the opinion of just one researcher and there are many other well established categories for Dyscalculia, one such example is published in the Journal of Learning Disabilities and has arisen from the research of Kosc Ladislav. He has broken Developmental Dyscalculia down into 6 areas; verbal, practognostic, lexical, graphical, ideognostical and operational developmental dyscalculia. (10)
Diana Laurillard (Professor of Learning with Digital Technologies at the Institute of Education, London) - “Although they [dyscalculic individuals] can count, they do not see the relationships between the numbers - e.g. that 5 is made up of 2 and 3. For them it is just a sequence, like the alphabet - we do not see E as made up of B and C, because it's not, it's just later in the sequence”
The UK DfES (Department for Education & Skills) Described Dyscalculia in its National Numeracy Strategy:
"Dyscalculia is a condition that affects the ability to acquire arithmetical skills. Dyscalculic learners may have difficulty understanding simple number concepts,lack an intuitive grasp of numbers, and have problems learning number facts and procedures. Even if they produce a correct answer or use a correct method, they may do so mechanically and without confidence."
Genetic, neurobiological, and epidemiologic evidence indicates that dyscalculia, like other learning disabilities, is a brain-based disorder. Some research suggests that it may be the result of an altered neural substrate.
It has also been suggested that poor teaching and environmental deprivation may compound the condition(9).
Because the neural network of both hemispheres comprises the substrate of normal arithmetic skills, dyscalculia can result from dysfunction of either hemisphere, although the left parietotemporal area is of particular significance according to UCL Institute of Cognitive Neuroscience. The debate as to whether the left or right parietotemporal area is linked with dyscalculia is hotly contested, however there is more research pointing towards a fault in the left parietotemporal area.
There is some research to suggest that Dyscalculia may occur as a consequence of prematurity and low birth weight and is frequently encountered along with a variety of other neurological disorders, such as attention-deficit hyperactivity disorder (ADHD), developmental language disorder, epilepsy, and fragile X syndrome. Developmental dyscalculia has proven to be a persisting learning disability, at least for the short term, in about half of affected preteen pupils. (2) Dyscalculia can also occur later in life as a result of a brain lesion or other traumatic brain injury.
Common symptoms include:
Memory: Poor long term memory resulting in an inability to remember names (despite recognizing faces). Inability to recall schedules or sequences for example dance steps and musical instrument fingering. Unable to remember rules in sports and other games such as card games, also find it hard to remember whose turn it is.
Numbers: Difficulty with numbers specifically in cases of addition, subtraction, omission, reversal and transposition. Inability to count- especially when asked to begin counting at a number other than 1. Particular difficulty with numbers with zero’s and their relationships to each other such as 10, 100, 1000.
Abstract Concepts: Poor concept mastery resulting in an inability to grasp maths concepts. Lack of ability for visualization such as numbers on a clock face and recognizing geographical locations and where they are in relation to these locations. Limited capability for strategic planning such as in chess. Difficulties with spatial orientation such as distinguishing left from right and north, south, east and west. Inability to grasp the concept of time or direction – frequently lost/late and has trouble telling the time. Difficulty handling money, many dyscalculic adults find themselves overdrawn as a result of this. Difficulty in planning for long term, tendency to focus on the present or near future.
Coordination: Poor athletic coordination resulting in difficulty keeping up with rapidly changing physical directions.
The inability to grasp abstract concepts translates to more practical situations:
Financial Planning: Due to the combination of the inability to grasp the concept of money and poor long term memory, financial planning is particularly challenging for dyscalculics. The actual value of products means very little and dyscalculics can also struggle with purchasing the correct quantities, for example when buying food at the supermarket often far too much or too little is bought. When change is given in shops few dyscalculics are able to correctly calculate how much money they have and how much they should have been given back. As a result of all of this, many dyscalculics are consistently overdrawn and rely heavily on others for help.
Currency: Following on from the inability to grasp the concept of money, foreign currency is particularly difficult to comprehend especially as the exchange rates are often changing and calculations are often involved when trying to convert one currency to another.
Temperature: Temperature is meaningless when told in numbers, especially when both Celsius and Fahrenheit are used.
Travelling: Few dyscalculics learn to drive as it is heavily reliant on numbers (speed limits, petrol gauge, distances, etc.). This means many must rely on buses and trains for transport. Getting the right bus/train at the right time and on the correct platform are all huge problems as each of those instances involves the use of numbers and time.
Scenario A “Jenny” is dyscalculic. She is a mother with 2 young children. She is trying to book train tickets online for herself and her two children. The train journey involves 1 change where she must walk to a different platform and also must ensure that her first train arrives at the change destination with enough time for her to find the correct platform before the train sets off for the second part of her journey. She needs to be able to book the tickets for the correct time and with the appropriate rail card, in order to be able to qualify for discounts. She also needs to be able to remember her password for her bank’s security system in order that she can purchase the tickets; this password is made up of a combination of letters and numbers to fulfil the bank’s ‘secure password’ criteria.
Step | Challenges |
---|---|
Tick box for ‘return’ | no challenges |
Type in from and to destinations | no challenges |
Select date and time for outbound & return journeys | This step is of particular difficulty as it requires the entry of a date and time for travel. Dyscalculics have a limited ability to grasp the concept of time, therefore may struggle to work out when their train journey is, and also how far away the date and time of their journey is from the current date and time. |
Select number of adult & child passengers | This step may prove difficult as dyscalculia can reduce the person’s ability to count- however if the numbers are not too high and the counting begins at 1, usually this is achievable. |
Tick box for railcards | no challenges |
Select railcard type and number that apply for this journey | This step again involves counting, however as above, if the numbers aren't too high this shouldn't prove too difficult. |
Select continue | no challenges |
Tick box for outward & return journeys (details to look at: time, price, class & single/return) | In this step, the only challenge is the selection of the time of the journey. As mentioned above, dyscalculics struggle with the concept of time, therefore they may be liable to selecting a return journey that occurs before the outward journey. Fortunately, most if not all online train ticket applications will not allow the transaction to proceed if this is the case- the error will be flagged in red. |
Select ‘buy now’ | no challenges |
Tick box to reserve seat and if so select seating preferences- optional | no challenges |
Tick box to collect tickets from self-service ticket machine and select station or tick box to have tickets sent by post | Not directly an issue at the point of purchase however collecting the tickets from a self-service ticket machine can be very difficult for dyscalculics. The ticket collection reference number used in order to validate the purchase is made up of an entirely random mix of numbers and upper & lower case letters. It would be almost impossible to commit this reference number to memory or find a pattern in it, therefore it must copied out which gives rise to sequencing issues resulting in the numbers being inputted in the wrong order and therefore the whole process could take a very long time. |
Select ‘continue’ | no challenges |
Tick box new user | no challenges |
Type in personal details (Name, Address, Email, etc.) | no challenges |
Tick box payment card type (Visa, MasterCard, etc.) | no challenges |
Enter card details (number, expiry date, name, security code) | Although this step does involve numbers, it does not require any manipulation of numbers such as addition, subtraction, etc. therefore the act of typing the numbers from the card into the website should be achievable; however some people may struggle with sequencing and end up typing the numbers out of order. |
Type in post code and tick box find billing address | no challenges |
Tick box to agree to terms and conditions and select ‘buy now’ | no challenges |
Enter payment card secure bank password | This step is likely to prove most difficult as it requires the use of the long term memory (LTM), which may be fairly limited in dyscalculics, and also the customer is required to enter their password out of its usual order, for example you may be asked to enter the 3rd, 5th and 7th characters in your password. As dyscalculics struggle with the concept of numbers and sequences this step may only be achievable by having the password written down in front of them, however this then reduces the security of their payment method. |
Order complete | no challenges |
Scenario B “Emily” is a high school student who struggles to understand many of the topics covered in her maths, science and music lessons. She needs to use her online banking account to transfer some money into a friend’s bank account. She hasn’t transferred money online to this particular friend before so she must set up a new user which requires using a card reader and typing in a code which appears on the card reader only for 30 seconds before it changes to increase security.
Step | Challenges |
---|---|
Type in customer number and select ‘log in’ | This step is challenging as the person is required to use their LTM in order to type in their customer number and dyscalculics typically have a poor LTM and difficulty with sequencing, therefore again they may need to have the password written down and this is then a breach of security. |
Type in 3 random digits from pin number (e.g. 1st, 3rd & 4th) Type in 3 random characters from password (e.g. 2nd, 5th & 10th) |
This requires the user to access their LTM to remember the password and then be able to count up each of the numbers/letters so as to enter the correct characters out of their normal pattern. Counting is hard for dyscalculics especially when it doesn’t begin at 1 which increases the difficulty of these 2 tasks. |
Select ‘payments and transfers’ and then ‘go’ | no challenges |
Select ‘pay someone new’ | no challenges |
Enter details of payee and select ‘add payee’ | This task does require numbers so it may be a challenge; however the numbers need to be copied and not manipulated which reduces the complexity. |
Type in amount to transfer | Calculating numbers is particularly difficult for dyscalculics as their grasp of maths concepts and rules is typically quite poor. Therefore this task could be very challenging. |
Follow on-screen instructions to verify new payee --> Turn on card reader and select function button --> Insert card into card reader --> Type in pin number to card reader --> Type in numbers on the computer screen into the card reader, select ‘ok’ on the reader --> Type the number that appears on the screen of the card reader into the box online --> Click confirm on the website |
This task is likely to be the most challenging of the transaction due to the time constraints that are in place for security reasons. Firstly the user must type their pin number into the card reader which requires the use of the LTM. However this can be achieved as often dyscalculics are able to remember their pin number as a pattern. Then the user must enter the numbers on the computer screen into the card reader, this shouldn’t be too difficult as it only requires copying the numbers. The user must then enter the numbers that appear on the screen of the card reader into a text box on the website. This stage is fairly difficult as the numbers on the card reader change every 30 seconds to increase security therefore the numbers must be typed in fairly quickly. Also many dyscalculics struggle to understand the concept of time and therefore may find it difficult to work out quite how quickly they must enter the numbers before they change. |
Payment complete | no challenges |
Scenario C “George” is an elderly gentleman who doesn't like to leave his house and does his supermarket shop online once a week and gets it delivered to his door. His bank details are stored on the shopping website so he doesn’t have to keep typing them in, however he has just been sent a new bank card as his old one has expired so he must re-enter all the details necessary to complete his shop.
Step | Challenges |
---|---|
Select ‘food and drink’ and then ‘buy groceries’ | no challenges |
Log in with username and password | no challenges |
Delete old payment card | no challenges |
Select ‘add payment card’ | no challenges |
Type in the card details | This task should be easily achievable as it does not require any manipulation of the numbers; also the numbers do not need to be remembered as they are printed on the card. However dyscalculics struggle with sequencing and therefore may be liable to typing the numbers out of the correct order. |
Tick box ‘make this my preferred payment card’ | no challenges |
Select ‘save’ and then either continue shopping or log out | no challenges |
Whilst dyscalculics may find it relatively simple to set up an online shopping account, it is far harder to complete the actual task of shopping. This stems from the inability to grasp the concept of money and the amount a product costs in relation to the amount of money they might have in their bank account. As a result of this dyscalculics frequently find themselves overdrawn as the task of calculating the numbers to produce a final figure which has some meaning to them as opposed to being a collection of random numbers is a concept they cannot master. This often leads to active avoidance of the task or strong reliability on others- neither of which is a sustainable solution. Quantities are also an abstract concept with dyscalculics often buying far too much or not nearly enough as it is difficult for them to work out exactly how much they need. Anything that involves weights and measures e.g. 1 kg of potatoes is also almost impossible to understand.
There is very little in the way of specific Assistive technologies for dyscalculia. One person reports using Smart sum - more research required.
http://www.dyscalculator.com/ is a talking calculator which is designed with dyscalculia. The Author has not tested this tool yet.
Many people with dyscalculia report that they enjoy using the internet, and there are quite a lot of people with dyscalculia using social media and online video. There is little if any optimised content available for dyscalculia. The scenarios give examples of where dyscalculia impacts people using products and services on the internet.
There is further research needed before we are in a position to add descriptions of key features and how it helps users overcome challenges. Very little work has been done on this topic.
It is widely acknowledged that dyscalculia was first discovered in 1919 by Salomon Henschen a Swedish neurologist who found that it was possible for a person of high general intelligence to have impaired mathematical abilities. At the time it was known as ‘number blindness’. The term Dyscalculia was later coined by Dr. Josef Gerstman in the 1940s. When compared with Dyslexia and other similar learning disabilities, Dyscalculia receives relatively little recognition and there is still limited awareness of its existence.
Although there are many classifications of Dyscalculia it can be broken down into 3 sections; Developmental Dyscalculia- inherited/acquired during prenatal or early developmental period. Post-lesion Dyscalculia- acquired during an incident of traumatic brain injury affecting specific areas of the brain. Pseudo-Dyscalculia- as a result of inadequate instruction.
Formal definition The Department for Education Skills (DfES) defines dyscalculia as: “A condition that affects the ability to acquire arithmetical skills. Dyscalculic learners may have difficulty understanding simple number concepts, lack an intuitive grasp of numbers and have problems learning number facts and procedures. Even if they produce a correct answer or use a correct method, they may do so mechanically and without confidence.”
Adult neuropsychological and neuroimaging research points to the intraparietal sulcus as a key region for the representation and processing of numerical magnitude (4). This raises the possibility of a parietal dysfunction as a root cause of dyscalculia (4). The following two studies support this research.
Virtual Dyscalculia Induced by Parietal-Lobe TMS Impairs Automatic Magnitude Processing
UCL scientists state that dyscalculia is a result of a malformation in the right parietal lobe in the brain – however the underlying dysfunction is relatively unknown (c.07). The study involved using neuronavigated transcranial magnetic stimulation (TMS) to stimulate the brain and cause dyscalculia, only for a few hundred milliseconds, in non-dyscalculic individuals. The subjects then completed maths tasks whilst under stimulation and produced dyscalculic like behaviour. However when the left parietal lobe was stimulated under TMS this behaviour was not observed and therefore it can be reasonably assumed that there is a causal relationship between defects in the right parietal lobe and dyscalculia. (3)
The above research is supported by the following research study: Impaired parietal magnitude processing in developmental dyscalculia - The study was conducted by Gavin R. Price, Ian Holloway, Pekka Räsänen, Manu Vesterinen and Daniel Ansari. The study shows that in children with developmental dyscalculia the right intraparietal sulcus is not modulated in response to numerical processing demands to the same degree as in typically developing children. This suggests a causal relationship between impairment of parietal magnitude systems and developmental dyscalculia. (4)
Research by Shalev, et al. suggests that some families have a genetic predisposition to dyscalculia resulting in prevalence 10x higher than in the general population. (5) Although Dyscalculia cannot be cured, it is hoped that early detection and remedial teaching can go a long way to reducing the effects of dyscalculia on the individual.
High comorbidity with ADHA (estimates range between 15-26%) and Dyslexia (estimates range between 17-64%)(6). There is strong evidence to suggest Turners Syndrome and Gerstmann’s Syndrome are associated with Dyscalculia(7).
Although there are no specific guidelines produced by a governing body, there are several ways to help an individual with dyscalculia in order to improve their mathematical abilities.
Some more useful guidelines regarding Dyscalculia, specifically for school children are available from Leeds City Council (PDF): Guidelines for Specific Learning Difficulties in Maths/Dyscalculia
Dyscalculia is still a relatively unknown disability with many of those affected by it not being diagnosed until later in life. Often, children in schools especially, those affected are thought to be stupid or lazy as many people are unaware of dyscalculia’s existence. This is analogous to the treatment of people with dyslexia.
Add ideas for filling gaps
Studies conducted by Gross-Tsur, Manor and Shalev in 1996 suggest that 3.5% of the population are dyscalculic. Conflicting research done by Lewis, Hitch and Walker in 1994 suggests that 1.3% of the population are dyscalculic while 2.3% are dyscalculic and dyslexic – putting the world population of dyscalculics at 3.6%. (8)
5-6% in school age children. (9)
This gives us the rough estimate that between 3½ - 6½% of the world population is affected by dyscalculia; however no international study has been done on how common it is.
Studies show that the presentation of dyscalculia in male and females is roughly equal; neither gender appears to have a greater predisposition than the other. (9)
(1) Geary, D.C., (1993). Mathematical disabilities: Cognitive, neuropsychological, and genetic components. Psychological Bulletin, 114(2), 345-362. Available from: http://psycnet.apa.org/psycinfo/1994-02259-001
(2) Butterworth, B. (1999). The Mathematical Brain. (London: Macmillan).
(3) Cohen Kadosh, R., et al. (2007). Virtual Dyscalculia Induced by Parietal-Lobe TMS Impairs Automatic Magnitude Processing. Current Biology, 17(8), 689-93. Available from: http://www.sciencedirect.com/science/article/pii/S0960982207010652
(4) Price, G.R., et al. (2007). Impaired parietal magnitude processing in developmental dyscalculia. Current Biology, 17(24), 1042-43 Available from: http://www.cell.com/current-biology/retrieve/pii/S0960982207020726
(5) Shalev, et al. (2001). Developmental Dyscalculia is a Familial Learning Disability. Journal of learning disabilities, 34(1), 59-65. Available from: http://ldx.sagepub.com/content/34/1/59.short
(6) Wilson, A.J. (2008). Dyscalculia primer and resource guide. Available from: http://www.oecd.org/edu/ceri/dyscalculiaprimerandresourceguide.htm
(7) Bruandet, M., et al. (2004). A cognitive characterization of dyscalculia in Turner syndrome. Neuropsychologia, 42(3) 288-98. Available from: http://www.ncbi.nlm.nih.gov/pubmed/14670569
(8) www.dyscalculiaforum.com
(9) Shalev, R.S. (2004). Journal of Child Neurology 19 765—771.
(10) Ladislav, K. (1974). Developmental Dyscalculia. Journal of Learning Disabilities. 7(3) 164-177. Available from: http://ldx.sagepub.com/content/7/3/164.short
(11) Clare Trott http://publications.lboro.ac.uk/publications/all/collated/mact2.html
In making user scenarios and user group research we are taking a multilevel approach.
In the user group research section of the gap analysis, we aim to identify abstract principles for accessibility for people with cognitive and learning disabilities, and core challenges for each user group as well as practical techniques.
However, when trying to identify abstract principles, it is often helpful to look at concrete user scenarios and challenges that different user group’s face. For that purpose we have identified the practical and diverse user scenarios that should be considered in user group research. These include:
Making sure users can communicate with people and be part of society. Tasks to investigate:
Using content should be:
Theoretical construct to help researchers think about how the brain actually works.
Background information - Theoretical Models, etc. (Wikipedia - Executive Function)
Loosely group into the following areas: goal formation, planning, goal-directed action, self-monitoring, attention, response inhibition, and coordination of complex cognition and motor control for effective performance. Difficulties in these areas are implicated in various disorders/disabilites.(Wikipedia - Executive Dysfunction)
from: LDonline - What is Executive Function?
from http://learningdisabilities.about.com/od/eh/a/executive_funct.htm
Trouble with the following:
Manifested as:
Strategies to over-come or manage deficits:
from: LDonline - What is Executive Function?
Memory functions, Short term, visual , math
special ED. Meta studies
Taking research persona and creating “technology persona” (tags system to link between use cases and brain function)
1.3 Comments§
This is an early and incomplete draft for review and to help us get comments and early feedback. We are particularly interested in:
We welcome comments and suggestions. Please send comments to … All comments will be reviewed and discussed by the task force. Although we cannot commit to formally responding to all comments on this draft, the discussions can be tracked in the task force minutes.