W3C home > Mailing lists > Public > public-semweb-lifesci@w3.org > January 2011

RE: moving forward: TM activities

From: Michel_Dumontier <Michel_Dumontier@carleton.ca>
Date: Fri, 7 Jan 2011 16:46:58 -0500
To: Melanie Courtot <mcourtot@gmail.com>
CC: "public-semweb-lifesci@w3.org" <public-semweb-lifesci@w3.org>
Message-ID: <E1784B0107E5634C8997868083EDE780611AB3CAC5@CCSMBX10.CUNET.CARLETON.CA>
> > 1 - sPCHR (semantic Personally Controlled Health Care Records) -> to
> capture
> > patient data using Semantic Web technologies, thereby making use of
> existing
> > Linked Open Data (drug, clinical, etc) and becoming a valuable source of
> > structured information for epidemiological research, clinical research
> and
> > drug discovery. We're keen on forming closer bonds with primary
> stakeholders
> > (developers of EHR standards and software; hospitals and clinics) and the
> COI
> > group to get this done.
> 
> I would consider patients (everyday people receiving care) and PCHR
> developers / vendors as more relevant stakeholders than healthcare provider
> institutions and developers of EHR standards.  The nature of PCHRs make
> them a disruptive force and very removed from the healthcare provider ecosystem.

Yes, the patients, of course... (blush) - certainly from a user experience point of view, but it doesn't take away from the fact that medical specialists and institutions (e.g. billing) will *also* have to enter data or link resources to this record (provided they have permission to do so).

 
> >   These seem like interesting directions to head out in - but we're open
> to
> > different ideas, and certainly to new participants :)  What do you think?
> 
> Personally, I like the idea of a subgroup focused on PCHR systems.  I think
> there might be more opportunity for Web 3.0 / 2.0 technologies to make an
> impact in that realm than in the traditional EHR ecosystem precisely
> because
> the stakeholders are already consumers of these emerging technologies (so
> non-technical issues such as risk aversion and vendor politics are not so
> much of a factor).
> 
> Just my $0.02
> 
> -- Chime

I'm in complete favor of this idea, and I think a number of TM participants are as well. It's a great opportunity for us to put our skills to the test. I will emphasize that we need to include and consult said stakeholders and ensure that we have a path for deployment (even as a working prototype) in a clinical setting. Opportunities towards this are most welcome.

m.

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Received on Friday, 7 January 2011 21:47:25 UTC

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