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Managing Patient Confidentiality and Consent in Semantic Web - please join COI call tomorrow for discussion

From: <helen.chen@agfa.com>
Date: Mon, 15 Jun 2009 16:05:01 -0400
To: public-semweb-lifesci@w3.org
Message-ID: <OF3D79CD7F.A4441BC0-ON852575D6.006C50C5-852575D6.006E5287@agfa.com>

Semantic Web technology is making headway to link data and connect people. 
However, in healthcare domain, this very success puts a person's privacy 
at much greater risks. Previously sufficient de-identification technique 
may be rendered inadequate because it is now possible to re-identify an 
identity via inference on the web. 

Both the Clinical Observation Interoperability group [COI] and Terminology 
group [TERM] were confronted with the challenges of patient consent and 
privacy while attempting to connect patient data for secondary uses in a 
web of data and web of semantics. 

The definition and sensitivity towards patient privacy and consent depend 
on a wide range of factors including care environment, culture, region, 
political and religious believes, and the use of patient data. The current 
security model is mainly based on predefined roles and relies on 
cryptography technology for managing patient consent and ensure 
confidentiality. It is not able to handle the complexity of patient 
confidentiality context and its changes. The full stack of semantic web 
technology from RDF to Trust layer promises much richer expressiveness and 
verification mechanisms, which seem to be the natural framework to address 
these challenges.
A separate wiki page is set up to capture the patient privacy and consent 
management scenarios.  We hope to stimulate the discussion and explore 
semantic web solutions for this highly complex problem:


Please join us for the COI tcon to discuss how semantic web technology can 
be used to address this challenges and we hope to identify use cases to 
demonstrate the technology framework.

COI Tcon tomorrow:

Tues., June 16 , 11:00am -12:00pm US EDT 
 Phone   +1 617 761 6200, conference  4257  (" HCLS ")
 IRC     irc://irc.w3.org:6665/hcls
 Browser-based IRC client:
 http://ircatwork.com <http://ircatwork.com/> ,
 Server: irc.w3.org:6665
 Channel: #hcls

Kind Regards,

Helen Chen | Agfa HealthCare
Senior Researcher | HE/Advanced Clinical Applications Research
T  +1 519 746 6210 Ext.3186 | M  +1 647 400 1523

Agfa HealthCare Inc., 455 Phillip Street, Waterloo, ON N2L 3X2, Canada
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Received on Monday, 15 June 2009 20:05:46 UTC

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